Still NED 7 years after lung laser surgery

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Location: New Zealand

Still NED 7 years after lung laser surgery

Postby Sophy » Sat Aug 14, 2021 9:03 pm

Hi all, just wanted to share that PET scan last week shows I am still NED after surgery for multiple lung mets in Germany and UK in 2014.

A huge thank you to the people on this forum who provided information and support when I needed it, especially Maia and CB75.

dx T3N1M0 Feb 11 when children age 11, 7 and 2
Xeloda/rad March 11, LAR June 11 temp ileo
Xelox 6 rounds, NED
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung, NED
Aug 14 Started Xeloda and Celebrex (ADAPT)
June 2020 CT shows nodule, bronchoscopy shows scar tissue, still NED
Dec 2020 stopping Xeloda
Aug 2021 still NED

Posts: 158
Joined: Sun Jun 28, 2020 4:44 pm

Re: Still NED 7 years after lung laser surgery

Postby prayingforccr » Sun Aug 15, 2021 9:16 pm

God bless you, Sophy

You give me hope.
Nov 2019: colonoscopy
Dec 2019: diagnosed with stage 3 rectal cancer 6+cm tumor
Jan-mar 2020: 20 sessions of radiation, mon-fri capecetibine, mon-fri clinical trial drug m3814
Apr 2020: tumor/scar 3.7cm
July 2020: began 8 treatmentsFOLFOX
August 2020: ct scan reveals scarbed reduced to 2.7cm CEA is 1.5
Nov 2020: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
May 2021: Multiple lung nodules (3-6mm) on ct scan

Posts: 1518
Joined: Sat Aug 17, 2013 5:46 pm

Re: Still NED 7 years after lung laser surgery

Postby stu » Mon Aug 16, 2021 3:28 am

Great news , I remember you and Stevie going through that !
Delighted to see you thriving !
Mum’s still going strong too! Seems the microdisease eventually settled !
Such an encouragement to everyone !
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Posts: 1574
Joined: Mon Jun 13, 2011 1:13 am

Re: Still NED 7 years after lung laser surgery

Postby rp1954 » Tue Aug 17, 2021 4:34 pm

That's a fantastic result Sophy. Congratulations and Thank You for continuing to share your story.
Your surgery is the premier lung resection tech, albeit little known outside this board. Since my wife had 3 lung nodules in 2010, I've been following Rolle's laser story here since seeing his paper. Just in case.

Sophy's story is an important lung met story worth following folks, for anyone facing one or 100 lung mets.
ADAPT and Rolle's laser lung treatment.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper to almost nothing mid 2018, mostly IV C

Posts: 323
Joined: Thu Aug 18, 2016 7:31 am

Re: Still NED 7 years after lung laser surgery

Postby zephyr » Tue Aug 17, 2021 5:31 pm

That is awesome, Sophy! I'm so happy for you! And as long as you're giving a thanks to people who provided information and support to you ... thank you, my friend, for all the help you gave me.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 F/U colonoscopies, all clear
Jun-2016 CRC during followup colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany), 11 nodules removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 Dec-2020 Xeloda/Avastin, SBRT, cont. Xeloda/Avastin
Dec-2020 Progression, considering all options
Mar-2021 Forfiri/Avastin

Posts: 230
Joined: Thu Aug 01, 2019 10:58 am

Re: Still NED 7 years after lung laser surgery

Postby Siti » Fri Sep 10, 2021 3:54 am

Thank you for sharing your story! Such great news
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

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