O Stoma Mia wrote:For your information, the acronym NED is usually defined as:
NED - No Evidence of Disease
There are several things that can be said about this concept.
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- This is essentially "street language" for the more technical term,"In remission". In official correspondence and in professional journal articles the term "In remission" is usually preferred because it has a definition that is more stable and is usually understood the same way by medical professionals and patients alike.
Remission: What Does It Mean?
https://www.webmd.com/cancer/remission-what-does-it-mean
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NOTE: I have included several additional bullet points above to signify that there is a quite a lot more that can be said about the concept of "NED", but this is not the place to discuss all of those details. At this point is is only necessary to understand that NED typically means "No evidence of disease", and that it does not mean "No existing disease"
Alreadyhere wrote:Can anyone provide clarification. There has been no treatments since the end of 2017. Doctor has never declared remission (stage 4) but since this time period all scans have said calcified lymph node unchanged not lymphadenopathy by size criteria (was cancerous and has had radiation to area in 2017-last treatment ever received )and no evidence of recurrent or progressive disease. The words No evidence of disease have never been listed but are we safe to assume no evidence of recurrent or progressive disease is the same as NED? If it is different or if the calcification of lymph node that is unchanged in size for 3 years means not NED can someone please clarify ?
drmike wrote:My situation is almost identical to yours as I was diagnosed stage 3 1.5 years ago. I underwent a successful surgery followed by Folfox chemo for 6 months. Following chemo and a subsequent CT scan (August 2022), it seemed that I was cancer free. At my next scan (December 2022), 3 retroperitoneal (para-aortic) lymph nodes appeared slightly at/above size criteria. My Onc discounted them as not related to my situation....well 3 and 6 months later they slightly increased in size. I am heading to the hospital today for a PET scan to confirm cancer and begin the next step of treatment. I have the same worries/fears that you and your husband do....I am 43 years old with a lot of life to live with my wife and daughter. your story has helped give me the added strength I need to know I still can still be here for years to
rp1954 wrote:drmike wrote:My situation is almost identical to yours as I was diagnosed stage 3 1.5 years ago. I underwent a successful surgery followed by Folfox chemo for 6 months. Following chemo and a subsequent CT scan (August 2022), it seemed that I was cancer free. At my next scan (December 2022), 3 retroperitoneal (para-aortic) lymph nodes appeared slightly at/above size criteria. My Onc discounted them as not related to my situation....well 3 and 6 months later they slightly increased in size. I am heading to the hospital today for a PET scan to confirm cancer and begin the next step of treatment. I have the same worries/fears that you and your husband do....I am 43 years old with a lot of life to live with my wife and daughter. your story has helped give me the added strength I need to know I still can still be here for years to
Distant LN are most conventionally treatable if they are oligometastatic and have especially targetable weaknesses. e.g. MSI - anti-PD-1 tx, or the most favorable of targeted Erbitux cases, like Anywhere. Common versions of distant LN with bad markers need extra diligence and special attention. If the latter, you probably need to go far beyond average SOC to be successful.
Depending on what "dr" you have, you might get a current version of NCCN Clinical Practice Guidelines in Oncology, and see if they have added any useful footnotes over the last 5 years.
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