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Am I screwed?

Posted: Thu Jul 22, 2021 8:08 pm
by behconsult
Hello everyone,

I just got scans back and indicated enlargement of the hilum and hilar. I am Braf V600e and am grateful to be out past 7 years. I have a cough and shortness of breath that is bothersome. I am scheduled to meet with a interventional pulmonologist however it is not until next month. I have cryoablation in early August on two lung lesions. I am scared. I have two kids age 11 and 14, I am hoping to raise until they get out of the house. I will likely go one the triplet therapy for BrafV660e
Anyone aware of treatment ideas? Bob

Chest: Hypermetabolic pulmonary lesions within the right lung which appear to
be significantly worse since the prior exam. Right lower lobe mass with
maximum SUV of 14.2, previously 3.9. Intense uptake within the right hilum
with maximum SUV of 12.8. Left hilar uptake with maximum SUV of 14.1. This is
new since the prior exam. Physiologic FDG uptake is seen in the myocardium.

Re: Am I screwed?

Posted: Fri Jul 23, 2021 11:54 am
by saltygirl
Congratulations on 7 years. “Bowel babe” in UK is braf and was on the same regimen for last few years. I think she was the 1st person in UK getting it. She is a “celebrity” in UK. She is on Instagram. Good luck.

Re: Am I screwed?

Posted: Mon Nov 08, 2021 3:43 pm
by JB09
7 years with BRAF is a milestone. Congrats. Are you MSI? My husband is MSS. Currently on 2nd line chemo.