Just wanting to chat with people who understand

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JenR
Posts: 4
Joined: Thu Jan 28, 2021 6:24 pm
Facebook Username: Jennifer weitz ratcliffe
Location: Florida

Just wanting to chat with people who understand

Postby JenR » Wed Jul 21, 2021 5:49 pm

I was diagnosed in January, 42 year old female, stage 4 metastasized to liver. Been doing folfox chemo, going to my 11th treatment soon. They found 2 nodules in my lung, but said they were fairly small and nothing to worry about. This stuff is scary and I don’t know anyone who has been through it so I am just reaching out to connect, hear other people’s experiences, etc.

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Jacques
Posts: 600
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: Just wanting to chat with people who understand

Postby Jacques » Thu Jul 22, 2021 1:51 pm

Welcome to the forum!

Here are some Stage 4 patient profiles for you to look at, if you are interested. You can scan the signatures to look for liver and/or lung involvement. Most of these people are still around and log in here from time to time.

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=65587&p=509066#p509066

Here are some patient profiles for people who had lung nodules of one kind or another:

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=65477&p=508458#p508458
Last edited by Jacques on Thu Jul 22, 2021 10:18 pm, edited 1 time in total.

skb
Posts: 59
Joined: Tue Mar 28, 2017 2:00 pm

Re: Just wanting to chat with people who understand

Postby skb » Thu Jul 22, 2021 2:21 pm

Jen,
Sorry to hear about your diagnosis. I went through colorectal diagnosis in 2017, got a lung met in 2019 and now my CEA is high again.

One in every two Americans will get a cancer diagnosis in their lifetime. SO this is becoming common.

Treatments are always improving. There are many stage 4 survivors here.

I hope you get the best treatment and a long life
3/21/17: Dx T3N0M0- distal rectal cancer, 4.5cm tumor, 2.5 cm from anal verge
4/18 to 5/22/17: chemoradiation - Xeloda 1800mg twice a day for 25 days, 200 Cgy/day
6/28/17: biopsy shows no cancer
8/09/17: MRI - no primary tumor left, starts wait and watch
8/17/17 to 12/1/17: mop-up chemo with Folfox and oxaliplatin (IV infusion), every two weeks
5/19 expanding right lung nodule, 8mm
8/19 VATS wedge
9/19, 12/19, 4/20, 7/20, 1/21- Clean CT, MRI, NED
7/17/21- Clean scans, CEA 15.6 !
7/22/21- CEA 17.3 !

prayingforccr
Posts: 139
Joined: Sun Jun 28, 2020 4:44 pm

Re: Just wanting to chat with people who understand

Postby prayingforccr » Thu Jul 22, 2021 6:24 pm

Nov 2019: colonoscopy
Dec 2019: diagnosed with stage 3 rectal cancer 6+cm tumor
Jan-mar 2020: 20 sessions of radiation, mon-fri capecetibine, mon-fri clinical trial drug m3814
Apr 2020: tumor/scar 3.7cm
July 2020: began 8 treatmentsFOLFOX
August 2020: ct scan reveals scarbed reduced to 2.7cm CEA is 1.5
Nov 2020: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
May 2021: Multiple lung nodules (3-6mm) on ct scan

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beach sunrise
Posts: 501
Joined: Thu Mar 05, 2020 7:14 pm

Re: Just wanting to chat with people who understand

Postby beach sunrise » Sun Jul 25, 2021 1:40 pm

Have you had an appt with a board certified colorectal surgeon yet?
They can have tremendous input on what they need to see on scans/treatment to be ready for surgery so that you don't miss the opportunity.
My first onc never mentioned seeing a surgeon. It was only when I started digging for info that I found how important they are as part of the team from the beginning. For me it goes back to the saying "docs only sell what they can provide."
Be your own best advocate!
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

JenR
Posts: 4
Joined: Thu Jan 28, 2021 6:24 pm
Facebook Username: Jennifer weitz ratcliffe
Location: Florida

Re: Just wanting to chat with people who understand

Postby JenR » Sun Jul 25, 2021 5:54 pm

Never have been on a blog before. Hope I’m doing this right! Haha, thank you so much for the info. I’m sure i will find it informative and helpful !!!



Here are some Stage 4 patient profiles for you to look at, if you are interested. You can scan the signatures to look for liver and/or lung involvement. Most of these people are still around and log in here from time to time.

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=65587&p=509066#p509066

Here are some patient profiles for people who had lung nodules of one kind or another:

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=65477&p=508458#p508458

JenR
Posts: 4
Joined: Thu Jan 28, 2021 6:24 pm
Facebook Username: Jennifer weitz ratcliffe
Location: Florida

Re: Just wanting to chat with people who understand

Postby JenR » Sun Jul 25, 2021 5:57 pm

Wow, half of the population gets cancer. That’s crazy, I didn’t know that. I thank you for your sentiment. And I will pray the same for you!!


Jen,
Sorry to hear about your diagnosis. I went through colorectal diagnosis in 2017, got a lung met in 2019 and now my CEA is high again.

One in every two Americans will get a cancer diagnosis in their lifetime. SO this is becoming common.

Treatments are always improving. There are many stage 4 survivors here.

I hope you get the best treatment and a long life

JenR
Posts: 4
Joined: Thu Jan 28, 2021 6:24 pm
Facebook Username: Jennifer weitz ratcliffe
Location: Florida

Re: Just wanting to chat with people who understand

Postby JenR » Sun Jul 25, 2021 5:59 pm

Thank you! I will check them out. The info under people’s posts is very interesting and informative. I’m still learning this mess.




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