I am back on the forum , 9 months after an abdominal surgery to remove retroperitoneal lymph node metastasis. This was followed by FOLFIRI (12 rounds- that is 6 months) during which I lost all hair
I suffered foot drop from the surgery due to nerve damage sustained during the surgery . I limp and use a walking stick. I have physiotherapy sessions. Also my bowel control is less than ideal, I often have to rush to the bathroom.
What is interesting is that the surgery took 10 hours and did not find any lymph node that had metastasis. Out of 6 samples taken, two tissue samples had cancer. I doubt if the procedure that made me kind of disabled was necessary at all. Here is the pathology report. I made complaints to the hospital about nerve damages but they say that I have no case and these are normal risks that manifested itself. i also tried getting some lawyer to represent me but no one out of 10 people I called was willing to take the case.
Are all these things common in pelvic surgery? (losing normal mobility, using a walking stick, reduced bowel control)
I felt very healthy before I went into surgery. Now I am a mess.
--------------Surgical pathology report- Oct 1st, 2021-----
A. RIGHT OBTURATORLYMPH NODES X5, EXCISION:
Negative for metastatic carcinoma (0 /5)
B. RIGHT OBTURATOR LYMPH NODE X1, EXCISION:
Negative for metastatic carcinoma (0 /1)
C. RIGHT OBTURATOR LYMPH NODES X2, EXCISION:
Negative for metastatic carcinoma (0 /2)
D. RIGHT OBTURATOR LYMPH NODE, EXCISION:
Fibroadipose and neural connective tissue:
-No lymph nodes identified; negative for carcinoma
E. PET POSITIVE RIGHT OBTURATOR LYMPH NODE, PART 1, EXCISION:
POSITIVE for carcinoma (intravascular):
-Fibroadipose and skeletal connective tissue only
-No lymph nodes identified (See Comment)
F. PET POSITIVE RIGHT OBTURATOR LYMPH NODE, PART 2, EXCISION:
POSITIVE for carcinoma (perineural and soft tissue):
-Fibroadipose, neural and skeletal connective tissue only
-No lymph nodes identified
3/21/17: Dx T3N0M0-mid rectal 4.5cm tumor
4/18 to 5/22/17: chemoradiation- Xeloda and daily radiation (25 doses)
6/28/17: clean biopsy, clean scans
8/09/17: MRI - no evidence of tumor, no surgery, starts wait and watch
8/17/17 to 12/1/17: adjuvant chemo with Folfox
8/19 VATS wedge on 1cm lung nodule
7/17/21- Clean CT, MRI, CEA 15.6 !
8/24/21- PET , biopsy finds metastasis along obturator lymph nodes
10/1/21- Surgery to remove metastasis , 12 rounds of FOLFIRI
4/15/22- Clean scan, normal CEA