Clean scans but CEA of 15.6 ! Seen this yet?

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Rikimaroo
Posts: 355
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: Clean scans but CEA of 15.6 ! Seen this yet?

Postby Rikimaroo » Tue Aug 03, 2021 9:08 am

SKB,

Glad we are both still alive and kicking. This stuff is tough to deal with and can really bring you down. Stay positive, I am very positive and try my best to stay strong. This is not easy.

My cancer is currently stable I am on a six week break from last chemo. I do Avastin and take the pump home for 3 days vs doing the pills.

Yeah I messed up on a few things during Watch and Wait. One of the key factors was to do chemo after, but I didn't and I am not sure if that made it come back. It is really tough making decisions regarding cancer treatment.

I hope your PET shares some results to make you more complacent, I know how much anxiety CEA is!!

Also to answer your question, yes CEA can jump from Jan to July. Were you getting any treatment during this time? I took a break for like 5 months and my CEA jumped and there was progression thus I have to be on chemo for life, or hopefully cancer just dies and go into remission.

I wish you all the best as well my friend!!
Riki
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.

skb
Posts: 83
Joined: Tue Mar 28, 2017 2:00 pm

Re: Clean scans but CEA of 15.6 ! Seen this yet?

Postby skb » Wed Aug 04, 2021 12:09 am

Hi Rikimaroo

No, I was not getting any treatment from Jan to July when the CEA jumped. I have not got any chemo since 2017 Dec and no treatment since solitary lung nodule surgery in August 2019.

I got some chemo after my wait and watch but I did not get any after the solitary lung nodule surgery in 2019. Now I am wondering if I should have. But the scans were clean for two years after that

My CEA was never elevated until last month. During diagnosis and the lung met, it was all < 0.5
3/21/17: Dx T3N0M0-mid rectal 4.5cm tumor
4/18 to 5/22/17: chemoradiation
6/28/17: clean biopsy
8/09/17: MRI - no evidence of tumor, no surgery, starts wait and watch
8/17/17 to 12/1/17: chemo with Folfox and oxaliplatin
5/19 expanding right lung nodule, 8mm
8/19 VATS wedge
9/19, 12/19, 4/20, 7/20, 1/21- Clean CT, MRI
7/17/21- Clean CT, MRI, CEA 15.6 !
8/02/21- Clean colonoscopy
8/24/21- PET , biopsy finds one obturator lymph node metastasis

skb
Posts: 83
Joined: Tue Mar 28, 2017 2:00 pm

Re: Clean scans but CEA of 15.6 ! Seen this yet?

Postby skb » Fri Aug 13, 2021 7:21 am

The PET scan found a hypermetabolic lymph node in the pelvis measuring 1.6cmx1.2 cm (near obturator chain in pelvic region) that was ruled 'recurrence' unless proven otherwise. I am so bummed. Has this kind of met been treated for any of you? If yes, please share details. I have not met with my oncologist yet.

The PET did not find any other lesions or lymph mets
3/21/17: Dx T3N0M0-mid rectal 4.5cm tumor
4/18 to 5/22/17: chemoradiation
6/28/17: clean biopsy
8/09/17: MRI - no evidence of tumor, no surgery, starts wait and watch
8/17/17 to 12/1/17: chemo with Folfox and oxaliplatin
5/19 expanding right lung nodule, 8mm
8/19 VATS wedge
9/19, 12/19, 4/20, 7/20, 1/21- Clean CT, MRI
7/17/21- Clean CT, MRI, CEA 15.6 !
8/02/21- Clean colonoscopy
8/24/21- PET , biopsy finds one obturator lymph node metastasis

skb
Posts: 83
Joined: Tue Mar 28, 2017 2:00 pm

Re: Clean scans but CEA of 15.6 ! Seen this yet?

Postby skb » Tue Aug 24, 2021 11:17 am

A biopsy confirmed metastasis to retroperitoneal obturator lymph node
3/21/17: Dx T3N0M0-mid rectal 4.5cm tumor
4/18 to 5/22/17: chemoradiation
6/28/17: clean biopsy
8/09/17: MRI - no evidence of tumor, no surgery, starts wait and watch
8/17/17 to 12/1/17: chemo with Folfox and oxaliplatin
5/19 expanding right lung nodule, 8mm
8/19 VATS wedge
9/19, 12/19, 4/20, 7/20, 1/21- Clean CT, MRI
7/17/21- Clean CT, MRI, CEA 15.6 !
8/02/21- Clean colonoscopy
8/24/21- PET , biopsy finds one obturator lymph node metastasis


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