Mymom still clean stage 4 diagnose May 2011

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Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Mymom still clean stage 4 diagnose May 2011

Postby mymom » Thu Jul 15, 2021 7:47 am

Hi all- I’m typing on my phone so excuse any mistakes. Many of you know me and many don’t. My moms journey started in May 2011 with stage 4 colon Mets to liver. She had many surgeries, tons of chemo and many ups and downs but in October 2015 we had a clean scan and she has been NED since. This past May was 10 years she started her journey and this October will be six years she’s clean. I’m not on here much but I like to come back and give an update. I always looked for hope on this board and it’s such a wonderful place. It gave me so much comfort during her darkest times. She is now 73 and still running around. Wish I can post a picture of her going down the slide with my 9 year old the other day. My oldest was 5 when she was diagnosed and now he’s 15. She has bowl issues so she can’t eat a lot of food without getting a reaction (never been able to figure that out) but in the grand scheme of things we are very blessed. I think about you all always. Lisa
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

Posts: 224
Joined: Thu Aug 01, 2019 10:58 am

Re: Mymom still clean stage 4 diagnose May 2011

Postby Siti » Thu Jul 22, 2021 8:14 am

Hi Lisa, thank you for sharing your mom’s story. I wish her a long healthy life ahead!
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

Nor Cal
Posts: 25
Joined: Sun Dec 06, 2020 8:18 pm

Re: Mymom still clean stage 4 diagnose May 2011

Postby Nor Cal » Thu Jul 22, 2021 1:40 pm

Congrats to your mother. These stories are gold for those of us battling stage 4. Thanks for sharing.
Dx June 2020, stage IV, w liver mets in both lobes. M, age 50. Right-sided colon tumor. BRAF mutation. CEA 120
July 2020 - July 2021 17 cycles chemo (FOLFOXIRI x9, FOLFIRI x6, 5-FU x2)
December 2020 - February 2021 Radioembolization, Chemoembolization x2

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