Mymom still clean stage 4 diagnose May 2011

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mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Mymom still clean stage 4 diagnose May 2011

Postby mymom » Thu Jul 15, 2021 7:47 am

Hi all- I’m typing on my phone so excuse any mistakes. Many of you know me and many don’t. My moms journey started in May 2011 with stage 4 colon Mets to liver. She had many surgeries, tons of chemo and many ups and downs but in October 2015 we had a clean scan and she has been NED since. This past May was 10 years she started her journey and this October will be six years she’s clean. I’m not on here much but I like to come back and give an update. I always looked for hope on this board and it’s such a wonderful place. It gave me so much comfort during her darkest times. She is now 73 and still running around. Wish I can post a picture of her going down the slide with my 9 year old the other day. My oldest was 5 when she was diagnosed and now he’s 15. She has bowl issues so she can’t eat a lot of food without getting a reaction (never been able to figure that out) but in the grand scheme of things we are very blessed. I think about you all always. Lisa
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023

Siti
Posts: 269
Joined: Thu Aug 01, 2019 10:58 am

Re: Mymom still clean stage 4 diagnose May 2011

Postby Siti » Thu Jul 22, 2021 8:14 am

Hi Lisa, thank you for sharing your mom’s story. I wish her a long healthy life ahead!
DH (54) DX on 5/7/19
Sigmoid|G3|LN:30/31|MSS|WT KRAS, NRAS, BRAF
7/19 PET distant LN para-aorta neck hip (0.5-1.5cm)
7/19 Lap resection
26/8 to 20/12/19 CAPEOX+Bev 7x
6/11/19 CT 3 cycle LN shrunk
1/20 Cap+Bev
4/20 TS-1+Bev due to bad HFS
NED 4 years
8/23 PET recurrence chest LN growing since Feb. CEA May(4.5>5.1>5.9)
9/23 Stopped Bev, CEA Sept(8.7) Radio 17x
11/23 PET 1+ supraclavicular LN, CEA (3.4>2.5)
12/23 Lymphadenectomy
1/24 Narrow margins, 1/5 +LN, 1.4cm +tissue, TMB (19)

Nor Cal
Posts: 89
Joined: Sun Dec 06, 2020 8:18 pm

Re: Mymom still clean stage 4 diagnose May 2011

Postby Nor Cal » Thu Jul 22, 2021 1:40 pm

Congrats to your mother. These stories are gold for those of us battling stage 4. Thanks for sharing.
Dx June 2020, stage IV, w liver mets in both lobes. M, age 50. Right-sided colon tumor. CEA 120.
BRAF+ TMB 5% MSS TDL1-1%
July 2020 - Present: 55 cycles chemo (All the various 5-FU regimens)
December 2020 - February 2021 Y90 Radioembolization, Chemoembolization x2


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