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I'm officially 10 years NED!

Posted: Wed Jul 14, 2021 11:30 am
by horizon
Ten years ago I created an account on here scared out of my mind. I didn't even really know what colon cancer was when I was diagnosed. No family history, no risk factors, had given up red meat years ago, worked out four times a week and somehow I got colon cancer. It was such a mixture of confusion, fear, anger, etc all at once. I had a colon resection and 6 months of chemo (XELOX).

I can now officially say that I'm ten years NED! This was my first scope with Suprep and it went so well it actually made me angry. Normally I feel so drained and beaten down when I arrive for my procedure. This time I felt curiously close to "normal". With the golytely prep you have to drink a massive amount of the worst tasting liquid on Earth and then I would drink Gatorade in between doses. I always felt like I was close to vomiting. The Suprep instructions almost seemed like a joke. One 16 oz glass and two glasses of water in an hour? Repeat hours later? And it's laughable that I've read comments from people complaining about the taste. Sure it wasn't great but it's nirvana compared to what golytely tastes like. Put some crystal light in it and it tastes like bad fruit punch. I've asked for years to be able to use the newer preps. One of the excuses I was given was that Golytely cleans you out better. I know now that's a load of hoo ha because four hours after I took my first Suprep dose I was still "expelling". My doc commented that my prep had performed superbly. I will N-E-V-E-R go back to the preps that make you drink a massive amount of awfulness and you shouldn't either if you are given a choice!

I can't stress enough how much forum members have helped me in the past.
  • They talked me into a port when I was initially dead set against it. I don't think I could have made it through chemo without it.
  • They boosted me when six months of chemo felt impossibly long.
It hasn't been all sunshine and rainbows. I've seen some appalling behavior on here but the good far outweighs the bad.

The life I'm living after a cancer diagnosis isn't the one I would have wanted but I'm incredibly grateful to have it (if that makes any sense).

I always appreciated when people shared their positive stories and hope this resonates with someone.

Re: I'm officially 10 years NED!

Posted: Wed Jul 14, 2021 1:43 pm
by DCook54
Congratulations!! And thanks for the info on bowel prep! (I never thought I'd be saying that!) I am only 18 months in and I constantly look for stories like yours to give me real-life hope that I can do it too!

Re: I'm officially 10 years NED!

Posted: Thu Jul 15, 2021 7:40 am
by mymom
That’s great!!!!

Re: I'm officially 10 years NED!

Posted: Thu Jul 15, 2021 7:52 am
by horizon
DCook54 wrote:Congratulations!! And thanks for the info on bowel prep! (I never thought I'd be saying that!) I am only 18 months in and I constantly look for stories like yours to give me real-life hope that I can do it too!


Another tip on things you never thought you'd talk about in public: bidets are a game changer for a colonoscopy prep. My butt didn't feel like I had been rubbing it with sandpaper when I was completely done.

Re: I'm officially 10 years NED!

Posted: Thu Jul 15, 2021 5:16 pm
by CRguy
Mega CONGRATS on the milestone my friend.

Keep kickin' BUTT and takin' names

Cheers and Harmony
CRguy

Re: I'm officially 10 years NED!

Posted: Fri Jul 16, 2021 7:05 am
by horizon
CRguy wrote:Keep kickin' BUTT and takin' names


I see what you did there! :lol:

Re: I'm officially 10 years NED!

Posted: Mon Jul 19, 2021 3:40 pm
by CRguy
:mrgreen:

Re: I'm officially 10 years NED!

Posted: Sat Jul 24, 2021 5:00 pm
by John72
Congrats Horizon! Glad to see you still doing well!

Re: I'm officially 10 years NED!

Posted: Sat Jul 24, 2021 7:03 pm
by horizon
John72 wrote:Congrats Horizon! Glad to see you still doing well!


Thanks John! I remember you and I had similar dates!

Re: I'm officially 10 years NED!

Posted: Sun Jul 25, 2021 8:29 am
by DarknessEmbraced
Congratulations! :D

Re: I'm officially 10 years NED!

Posted: Sat Jul 31, 2021 8:56 pm
by DBF
Congrats!! That’s quite a milestone.

I was asked (maybe on the Colon Club calendar application?) what I learned from this whole cancer experience. My answer was that I learned never to drink anything that ends in “lytely.” :lol:

So nice to see your post.

All the best!
Donna

Re: I'm officially 10 years NED!

Posted: Sun Aug 01, 2021 8:11 am
by horizon
DBF wrote:I was asked (maybe on the Colon Club calendar application?) what I learned from this whole cancer experience. My answer was that I learned never to drink anything that ends in “lytely.” :lol:



Yesssssssss. Never again for either of us!!! :D

Re: I'm officially 10 years NED!

Posted: Thu Aug 05, 2021 7:53 am
by Gravelyguy
That is so awesome Horizon! Congrats on such a great milestone. Praying you have many more years of memory making!

Dave

Re: I'm officially 10 years NED!

Posted: Fri Aug 13, 2021 11:40 am
by Koreysue
Congrats Horizon!
Thank you for sharing this happy news.
Ksue

Re: I'm officially 10 years NED!

Posted: Sat Aug 14, 2021 6:15 pm
by kiwiinoz
Congratulations mate, really happy for you :D