I'm officially 10 years NED!

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Sophy
Posts: 256
Joined: Fri May 27, 2011 2:46 am
Location: New Zealand

Re: I'm officially 10 years NED!

Postby Sophy » Sat Aug 14, 2021 9:08 pm

Well done! That is good to hear, congratulations.
dx T3N1M0 Feb 11 when children age 11, 7 and 2
Xeloda/rad March 11, LAR June 11 temp ileo
Xelox 6 rounds, NED
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung, NED
Aug 14 Started Xeloda and Celebrex (ADAPT)
June 2020 CT shows nodule, bronchoscopy shows scar tissue, still NED
Dec 2020 stopping Xeloda
Aug 2021 still NED

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horizon
Posts: 1638
Joined: Tue Apr 12, 2011 10:10 pm

Re: I'm officially 10 years NED!

Postby horizon » Sun Aug 15, 2021 4:18 pm

Thank you everyone! :D
I'm just a dude who still can't believe he had a resection and went through chemo (currently 10 years NED). Is this real life?

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Rob in PA
Posts: 2006
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: I'm officially 10 years NED!

Postby Rob in PA » Tue Aug 17, 2021 7:42 am

Horizon, that is terrific news!!!

It is great to see some old friends on here and it reminds me that i need to check in more often to help give hope for those that think it cant be done. Storylines like yours, Horizon, certainly provide a ray of light!! :D

Cheers,
Rob in PA
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

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horizon
Posts: 1638
Joined: Tue Apr 12, 2011 10:10 pm

Re: I'm officially 10 years NED!

Postby horizon » Tue Aug 24, 2021 7:25 am

Rob in PA wrote:Horizon, that is terrific news!!!

It is great to see some old friends on here and it reminds me that i need to check in more often to help give hope for those that think it cant be done. Storylines like yours, Horizon, certainly provide a ray of light!! :D


Thanks! I see some names on here and the memories start flooding back.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 10 years NED). Is this real life?

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O Stoma Mia
Posts: 1691
Joined: Sat Jun 22, 2013 6:29 am
Location: On vacation. Off-line for now.

Re: I'm officially 10 years NED!

Postby O Stoma Mia » Tue Aug 24, 2021 9:16 am

horizon wrote:
Rob in PA wrote:Horizon, that is terrific news!!!

It is great to see some old friends on here and it reminds me that i need to check in more often to help give hope for those that think it cant be done. Storylines like yours, Horizon, certainly provide a ray of light!! :D


Thanks! I see some names on here and the memories start flooding back.
...
Horizon


Yes! I agree, it's so nice to see some old friends around here, and yes ... speaking of floods ...

    In 2013, Rob in PA wrote:So proud of myself for completing a one mile section of developed trail that had been previously dubbed "the missing link" because it sat idle for 12 years due to lack of funding and leadership. Myself and a good friend of mine (I'm the one with the hat in picture) took it upon ourselves to finish the trail ourselves with donated labor, equipment and some fundraising. That one mile "missing link" connected an eleven mile trail when done ( The Path of the Flood Trail ) and travels through the oldest (abandoned now of course) railroad tunnel in America (Staple Bend Tunnel)
    ...
    Rob

Siti
Posts: 230
Joined: Thu Aug 01, 2019 10:58 am

Re: I'm officially 10 years NED!

Postby Siti » Fri Sep 10, 2021 3:52 am

Congratulations! Really happy to hear the good trend :)
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

teacher2017
Posts: 274
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: I'm officially 10 years NED!

Postby teacher2017 » Sun Sep 19, 2021 7:31 pm

Wonderful!!!!!!!!
50 yo mom of 2 (15, 18)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/17-4/18
CEA -1.4 11/8/17
Colonoscopy- 5/18-CLEAR!
Cea -1.8 6/18
Cea -2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection-9/18
Cea -1.5/1.2
Port removal-9/19
Cea -1.2 10/19
Cea -1.1 02/2020
Cea - 1.2 5/20
Cea-1.1 9/20
Cea- 1.3 2/21
Cea.1.3 5/21

susanCT1
Posts: 8
Joined: Mon Sep 20, 2021 5:54 pm

Re: I'm officially 10 years NED!

Postby susanCT1 » Wed Sep 22, 2021 4:52 pm

Great, keep these good news coming
Wife to my DH
8/10: Dx 45 M, father of 2 boys(5 and 3), Greater Chicago region
Tumor location: left side, sigmoid colon, CEA 945
Stage 4, Colorectal Poorly differentiated Adenocarcinoma,
Mets: Lymph nodes Cervical, Chest, abdominal, pelvis

Biomarker: Tumor burden 2.1, MSS, KRAS/BRAF/NRAS wild, RAD51B, TP53, APC, ZNF217
Chemo: Folfoxiri+Avastin
9/13: 2nd CEA scan 1008

Sunnycd
Posts: 68
Joined: Fri Feb 26, 2021 10:36 am

Re: I'm officially 10 years NED!

Postby Sunnycd » Sun Sep 26, 2021 10:45 pm

10 years, WOW. Congratulations! Super happy for you!
DX Feb. ‘21 CC IIB @ 51
Jan. ‘21 ER surgery, temp. colostomy
Sigmoid, adernocarcinoma
T4aN0MX, G2
0/24 lymph nodes
LVI: indefinite
PNI: not identified
Margins: clear
March ‘21 started 4 rounds of CAPOX
06/17/21 last day of CAPOX
06/25/21 CT scan clear
CEA: @ dx 4, post surgery 1.9, post chemo: 2.9; 09/21: 1.5
07/14/21 colostomy reversal
09/24/21 CT clear
MSS, RAS/RAF wild, PIK3CA mutant

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Jimswife
Posts: 907
Joined: Fri Nov 18, 2011 9:53 am

Re: I'm officially 10 years NED!

Postby Jimswife » Sat Oct 02, 2021 3:02 pm

Right behind you …. 10 years this month glad your still doing well
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!


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