surgeon appt/ND appt update

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beach sunrise
Posts: 1033
Joined: Thu Mar 05, 2020 7:14 pm

surgeon appt/ND appt update

Postby beach sunrise » Fri Jul 09, 2021 2:58 pm

Still hunting reason for high CEA and a few other markers.
CT scan was clear so doing PET in next few weeks to check for pelvic recurrence maybe. Last PET was Sept 2020, it was clear with mention of hypermetobolic activity along resection so thought it was post surgical inflammation related most likely.
Also in the works is getting a 7T MRI scan.
With ND we are trying Niacinamide for underlying inflammation and other pathway blocking hopefully. Nausea is a side effect but who cares about nausea, it won't kill me but cancer will. I'll try it out.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

skb
Posts: 100
Joined: Tue Mar 28, 2017 2:00 pm

Re: surgeon appt/ND appt update

Postby skb » Mon Aug 09, 2021 1:15 pm

Hello beach_sunrise,
How did your PET scan go?
My CEA is also rising with nothing visible in CT, I am requesting the doc for a PET but it has not been scheduled yet
skb
3/21/17: Dx T3N0M0-mid rectal 4.5cm
4/18 to 5/22/17: chemoradiation- Xeloda and daily radiation (25 doses)
6/28/17: clean biopsy, clean scans
8/17: MRI - no evidence of tumor, no surgery, starts wait and watch
8/17 to 12/17: Folfox
8/19 VATS - 1cm lung nodule
7/17/21- Clean CT, CEA 15.6 !
8/24/21- PET , biopsy finds met along obturator lymph nodes
10/1/21- Surgery , 12 rounds of FOLFIRI -ended 4/22
4/15/22, 9/6/22. 1/20/23- Clean scan, normal CEA
10/23- four sub-centimeter lung nodules, all PET negative

User avatar
beach sunrise
Posts: 1033
Joined: Thu Mar 05, 2020 7:14 pm

Re: surgeon appt/ND appt update

Postby beach sunrise » Thu Aug 19, 2021 10:26 pm

I had to reschedule all my appts.
I'll let you know how it all turns out when I have it done.
I will have a PET and a lung specialist consult on same day along with surgeon appt is how its set up at the moment.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test


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