surgeon appt/ND appt update

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beach sunrise
Posts: 517
Joined: Thu Mar 05, 2020 7:14 pm

surgeon appt/ND appt update

Postby beach sunrise » Fri Jul 09, 2021 2:58 pm

Still hunting reason for high CEA and a few other markers.
CT scan was clear so doing PET in next few weeks to check for pelvic recurrence maybe. Last PET was Sept 2020, it was clear with mention of hypermetobolic activity along resection so thought it was post surgical inflammation related most likely.
Also in the works is getting a 7T MRI scan.
With ND we are trying Niacinamide for underlying inflammation and other pathway blocking hopefully. Nausea is a side effect but who cares about nausea, it won't kill me but cancer will. I'll try it out.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

skb
Posts: 83
Joined: Tue Mar 28, 2017 2:00 pm

Re: surgeon appt/ND appt update

Postby skb » Mon Aug 09, 2021 1:15 pm

Hello beach_sunrise,
How did your PET scan go?
My CEA is also rising with nothing visible in CT, I am requesting the doc for a PET but it has not been scheduled yet
skb
3/21/17: Dx T3N0M0-mid rectal 4.5cm tumor
4/18 to 5/22/17: chemoradiation
6/28/17: clean biopsy
8/09/17: MRI - no evidence of tumor, no surgery, starts wait and watch
8/17/17 to 12/1/17: chemo with Folfox and oxaliplatin
5/19 expanding right lung nodule, 8mm
8/19 VATS wedge
9/19, 12/19, 4/20, 7/20, 1/21- Clean CT, MRI
7/17/21- Clean CT, MRI, CEA 15.6 !
8/02/21- Clean colonoscopy
8/24/21- PET , biopsy finds one obturator lymph node metastasis

User avatar
beach sunrise
Posts: 517
Joined: Thu Mar 05, 2020 7:14 pm

Re: surgeon appt/ND appt update

Postby beach sunrise » Thu Aug 19, 2021 10:26 pm

I had to reschedule all my appts.
I'll let you know how it all turns out when I have it done.
I will have a PET and a lung specialist consult on same day along with surgeon appt is how its set up at the moment.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"


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