I am going on two years with CRC. Man, its been a learning curve for sure. NED on scans since surgery of the primary but I don't think so because of CEA still over normal range (it is a good marker for me). So far my surgeon is the only one that agrees with me about the possibility.
I have expanded bloodwork every 7-10 days still, scans every 3 months, ND's, onc and surgeon on my team. I do not put all my faith in any one specialist is why I have several at different facilities, ect.
Being aggressive has been the key factor with my case and reminding docs here and there about when its time to look at this or that more closely. Ya, docs are very busy and sometimes things can slip.
I find you have to be very pro-active advocating for yourself to stay ahead and have a good QofL= Don't take NO for an answer. This is war in my mind. Thank you CRguy and rp1954 for giving me the attitude needed to combat cancer for my benefit. I've only had to pull Madea out of me twice sweetly of course, ha. But I did warn my husband once if he saw cops pull up things are not going smoothly and to just go to the police dept and wait for bond amount to bail me out. That day I was either going to get the xeloda rx or go to jail trying to do better than minimum SOC. Goodness! I came out with rx and my husband was so relieved. Best move I have made so far in this war.
I have been digging into scanning equipment and thinking I might get different scanning machines based on availability at the time is why I am getting the run around with rad dept about what machines have been used on me per scan. Some are better than others. May be the reason some blips are noted on one report but not the other. Who knows, just a guess. So, found a facility with a top machine and hoping my case will qualify for the scan. Fingers crossed!