A series of unfortunate events

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Joined: Fri Jul 21, 2017 3:43 am

Re: A series of unfortunate events

Postby NHMike » Wed Jul 28, 2021 10:13 am

NorseMan wrote:Okay, so here is where I could possibly use some insight. Definitely in this life, no one gets out of here alive and by this age, we all have wear and tear on our bodies. The CT scan said I had a borderline prominent Left supraclavicular lymph node that was stable ( was 15x9 mm now 15 x 11 mm). Small amount of residual soft tissue appears within the anterior mediastinum suggesting thymic hyperplasia stable... Tiny right hepatic hypodensity too small to classify and most likely present on previous scan. Borderline splenomegaly measuring 13.1 cm previously 11.9. Small bone island with the left iliac wing is stable.

Let me know if you guys see anything there that I can or should do something about, thank you. And the feeling of intense joy because I am going to be healthy at least a little while longer completely evaporated unfortunately. Will try to get it back!

The people reading scans add in random stuff about your body. Sometimes you get someone that is very detailed and points out all of the problems and potential problems that they can see and sometimes they limit their comments to the reason why you are getting the scan. It can be a little discomforting to find out that you have problems but a lot of this comes with age or our activities.

You could look those things up on the internet or ask your GP about them. Some of them you might look into fixing if they are causing you problems or may cause problems in the future. Getting rid of cancer is the really big one though.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Posts: 756
Joined: Fri Apr 06, 2018 11:40 am

Re: A series of unfortunate events

Postby boxhill » Wed Jul 28, 2021 1:47 pm

Well, from my experience I wouldn't worry about the enlarged spleen. Chemo causes it, and it will almost certainly gradually shrink beck to a more normal size. I had it, and at one point I think it was bigger than yours. I was advised at that stage to avoid activities that were likely to cause hard falls or blows to the abdomen, just in case. It wasn't viewed as being a particularly precarious situation.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
6/20 Stop Key

Posts: 8
Joined: Tue Jun 22, 2021 3:55 pm
Facebook Username: Norse Man

Re: A series of unfortunate events

Postby NorseMan » Fri Sep 10, 2021 6:21 am

I have a medical benefit through work of getting second opinions from “Best Doctors” so I asked them to review my ct scan and also provide feedback on treatment so far. I always learn more from their reports. The main doc gave me a 70-75% chance of being cured which he said was a little lower because my cancer was aggressive and I only did 5 of 8 Capox treatments.

The doctor reading my cat scan said this about a Liver lesion – The right lobe, approximately 5 mm, low attenuation density described on the 2021 report is too small to characterize completely and is indeterminate. The differential is broad and includes both neoplastic (benign and malignant) and inflammatory processes. The slice reconstruction thickness is 5 mm for both axial C/A/P series; however, this lesion was not seen on the higher resolution 2 mm coronal and sagittal reconstructions from 2020. Thick slice (5 mm) reconstruction is common for studies burned to CD, whereas the original examinations were undoubtedly acquired with thinner slice reconstruction (2-3 mm) allowing better resolution of such a small lesion. Given the associated diagnosis of colon cancer, although this newly identified lesion is nonspecific, metastasis cannot be ruled out. Given its small size and location, PET/CT would be unlikely to clarify the etiology unless it grows further. An MRI with Eovist would be better able to identify the lesion over PET/CT but may not be any better in determining the etiology (unless it is a cyst). Ultrasound would likely be inconclusive given the small size. Therefore, I recommend short interval follow-up with CT in 3 months to evaluate for change.

So I may fight for an MRI in three months versus another blast of radiation.

I also got a good summarized list of odds based on stage and treatment I may post in another thread so people can look at it…
Male, 55 @ DX
11/5/20: Colonoscopy, find tumor
11/6/20 CT Scan, no spread seen
11/16/20 CEA 1.2
11/19/20 Left Side Colectomy (4-5" ? removed)
Stage 3B (TNM: pT3, pN1b, cM0), 3 of 19 lymph nodes invaded. Poorly differentiated, 3 tumor deposits, perineural tracking
12/01/20 CEA 1.3
12/01/20 Started CAPOX
03/16/21 Quit Capox at 5 of 8 rounds
05/10/21 CEA 1.6
07/26/21 CEA 1.6
07/26/21 CT Scan, no metastic disease seen, small hepatic hypodensity observed

Posts: 112
Joined: Sun Mar 26, 2017 3:24 pm
Location: CT

Re: A series of unfortunate events

Postby Brearmstrong » Thu Nov 18, 2021 6:32 am

Hi Norseman,
Checking in to see how your 3 month scan went? I’ve followed your story as I am now dealing with potential new liver lesions described like yours and likely needing a biopsy. Hoping you got good news?
48 F Jan 17 2 sons
tumor appendix/colon
Muc Adeno 4cm
mod diff G2 T4aN2
nodes 8/50
CEA 4.6 after surgery <.05
FOLFOX Apr-sep 17
Clean CT Jul 2017, oct 17, CEA 3.4, 8.1. May 18 2.3,1.0,1.3, 1.3, 1.0, 2.3, 2.2, 2.1,2.2,1.6,1.4,1.5,2.8,2.2,2.5
Nov 17 PET p aortic nodes Stage IV
Folfori w/avastin
May 18 surgery on nodes xeloda 2yr
Aug 18-May 20 NED
July 20 hysterectomy CEA 1.7 chemo break
July 21 vats right lung
Clinical trial- failed new liver lesions?

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