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Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Thu Jun 10, 2021 5:43 pm
by prayingforccr
beach sunrise wrote:What name, make and model of scan machine was used? Where did you have your scans?


The scans were done and read at sloan kettering.

I don’t see the name, make, model of the machine they used.

The scans in may were done at jupiter medical center.

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Fri Jun 11, 2021 5:00 am
by Brearmstrong
Hi there, I don’t think you mentioned it but how is your CEA? Is that hinting that something is going on? You said MSK confirmed disease. Based on shape, appearance?

Brenda

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Fri Jun 11, 2021 6:03 am
by prayingforccr
CEA is 2.6.

Both mskcc and jupiter medical indicated suspected metastasis because of history of rectal cancer and how they reflected the contrast, but they are currently too small to biopsy.

So, not 100%.

I’m hoping they are a bunch of atelectasis or mucus plugs from hyperbaric oxygen therapy.

I’m going to be getting new scans in august.

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Fri Jun 18, 2021 1:37 pm
by Claudine
Well, it's now been 16 months since my husband's last Folfiri + Avastin cycle, and his lungs are still looking good: "Lungs, Pleura and Airways: Scattered calcified granulomata again noted unchanged. No new nodules identified". I hope yours disappear without treatment, prayingforccr, or that they're not mets in the first place, but if they are - know that systemic chemo can control them!

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Fri Jun 18, 2021 5:36 pm
by prayingforccr
Thank you, Claudine.

It’s hard for me to not fear the worst, but I do think it unusual to go from ZERO to NINE nodules in all lobes of the lung in a matter of five months.

The variable was the hyperbaric oxygen therapy I began in december and continued up until the scan, so I am really, really hoping that what was picked up was treatment results from the hbot (atelectasis/mucous plugs/granuloma).

If it isn’t, I don’t think I’ll be around long :(

I am doing the Tippens Protocol in the interim and hoping for the best.

Scans in august.

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Sat Jun 19, 2021 12:53 am
by rp1954
Our trials for alternative adjuncts' performance were faster, mostly around broad, sensitive blood work for us.
Some tissue work. Nonperformance has to be factored in, how to recognize it, and what to do about it soonest.
CEA may not be sensitive enough for your situation, alone (needs more series data at least for "noise" scatter) - my wife on her cancer treatment and low, baseline CEA had less CEA scatter than I do. Signal (meaningful CEA changes) to CEA noise ratio is important for detection and more informed decisions amongst blood panels. She had a lot of ant-inflammatories, from oral supplements to celecoxib and 1/4 aspirin to IVC. Imaging factors into the bloodwork too.

We would have rated your Tippens' protocol at least "insufficient" on the individual level and try to find another combination soonest, with or without the Tippens part.

Our alternative starting point after 8 yrs chemo is essentially chronomodulated oral 5FU chemo prodrugs, potent nutraceuticals, and celecoxib, then consider add-ons and observe responses across 6-12 blood panels for the cancer, and more for side effects, or side benefits. I am very impressed with 5FU compounds, in the right formulations, against most but not all CRC disease.
The thing is that -azole dewormers tend to be very harsh to combine with 5FU drugs, but not all dewormers are azoles (e.g. like IVM).

To us, the trick is to get enough punch to kill/damage/dissolve smaller mets, stop spread, and get advanced surgeries as necessary. In your case, the German laser lung treatment might be important to consider with better chemo. Conventional cyclic chemo treatments are too toxic for continuous treatment and most continuous regimes are too low powered without add-ons and changes. The add-ons are best targeted by some prior measurement, or observed for performance, or both.

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Sat Jun 19, 2021 8:09 am
by prayingforccr
I’m not sure I understand rp1954.

Do you not like the Tippens Protocol for a specific reason?

I’m taking fenbendazole dissolved in dmso/curcumin/full spectrum cbd oil/resveratrol/vitamin d3/vitamin b complex/turkey tail mushrooms/dha each day.

It’s the best I could come up with.

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Sat Jun 19, 2021 1:15 pm
by beach sunrise
Interesting for sure.
Keep us updated on the Tippens protocol. I hope it does the trick and scan is clear.
I take xeloda and ivermectin as part of my personal ADAPT+++, so far I have a great response. Scan on Friday.

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Sat Jun 19, 2021 2:34 pm
by prayingforccr
beach sunrise wrote:Interesting for sure.
Keep us updated on the Tippens protocol. I hope it does the trick and scan is clear.
I take xeloda and ivermectin as part of my personal ADAPT+++, so far I have a great response. Scan on Friday.


Wishing you a clean scan.......I may need to bend your ear on the ADAPT+++

My next scans are in august, so I will have been on the Tippens Protocol for about 12 weeks.

How would I dose, procure and take the ivermectin? What form to buy?

Very curious on my end as well.

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Sat Jun 19, 2021 3:12 pm
by beach sunrise
Several small studies had success with IVM for anti-cancer is why I was interested. It is also very good for Covid too. A win win for me, protects me two ways in my opinion.
IVM is dr Rx and gotten thru a compounding pharmacy. Most likely you would have to go thru an alt dr (out of the box thinker) or plea your case with your current SOC dr and don't take NO for an answer but have papers to back you up with very nice attitude of "My Cancer, My Choice. Not yours or NCCN SOC." I end with "We will both sleep better at night knowing we tried our best for my benefit." For me, all my dr's know SOC is in the rearview mirror. Let's move on!!!

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Sat Jun 19, 2021 4:07 pm
by prayingforccr
beach sunrise wrote:Several small studies had success with IVM for anti-cancer is why I was interested. It is also very good for Covid too. A win win for me, protects me two ways in my opinion.
IVM is dr Rx and gotten thru a compounding pharmacy. Most likely you would have to go thru an alt dr (out of the box thinker) or plea your case with your current SOC dr and don't take NO for an answer but have papers to back you up with very nice attitude of "My Cancer, My Choice. Not yours or NCCN SOC." I end with "We will both sleep better at night knowing we tried our best for my benefit." For me, all my dr's know SOC is in the rearview mirror. Let's move on!!!



Thinking ivc and fenben

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Sat Jun 19, 2021 4:13 pm
by beach sunrise
All of my decisions for Tx is based on my mutations really.
IVC is a great add on for kRAS mutant, proven over and over to combat it.
Do you have mutation(s)?

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Sat Jun 19, 2021 4:28 pm
by prayingforccr
beach sunrise wrote:All of my decisions for Tx is based on my mutations really.
IVC is a great add on for kRAS mutant, proven over and over to combat it.
Do you have mutation(s)?


Somatic alterations detected in this sample:
Gene Type Alteration Location Additional Information
+: A glossary of terms and icons used in this report can be found after the "Test and Methodology" section . β: MSI Note: The MSIsensor score is 0.75.
RefSeq IDs for the genes with reported variants along with a list of all 505 genes can be found on the last page
FDA Approved and/or NCCN recommended biomarker:

Mutations

KRAS Missense Mutation G13D (c.38G>A) exon 2 MAF: 24.0%
TP53 Frameshift Deletion V97Afs*26 (c.290del) exon 4 MAF: 29.6%
APC Frameshift Insertion S1426Rfs*48 (c.4276_4277dupAG) exon 16 MAF: 26.2%
GAB1 Missense Mutation T606R (c.1817C>G) exon 9 MAF: 11.0%
TCF7L2 Missense Mutation P415R (c.1244C>G) exon 11 MAF: 15.8%
MutatCopy Number Alterations
RTEL1 Whole gene Amplification 20q13.33 FC: 2.0

I’m a smart guy. Ive been doing my research. I don’t know what any of these means to me currently.

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Sat Jun 19, 2021 4:42 pm
by beach sunrise
Yep, research and hammer the hell out of those mutations!

Re: Unusual To Go From Zero To Nine Lung Nodules In 6 Months?

Posted: Sat Jun 19, 2021 4:57 pm
by prayingforccr
beach sunrise wrote:Yep, research and hammer the hell out of those mutations!


On it.

What do you think of my original premise? Is it odd/rare to go from ZERO to NINE small (3-5mm) lung nodules, in all lobes, within 6 months?

The variable from the nov vs the may scan was the 2hrs a day hyperbaric oxygen therapy I did 5 days a week.

I’m hoping whatever was picked up is treatment effect (inflammation/atelectasis/mucous plugs) from the hbot.