Care at a elite cancer center without traveling to it ?

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worriedson714
Posts: 49
Joined: Mon May 03, 2021 4:27 pm
Facebook Username: jasonbeck

Care at a elite cancer center without traveling to it ?

Postby worriedson714 » Sun Jun 06, 2021 3:22 pm

Hello all ,
So I been hearing alot about people getting care threw places like MSK without actually traveling there and am wondering how it all works ? In cases where the patient needs treatment can it happen at a local cancer center with MSK in charge of it ? I would really love to get my dad the kind of treatment MSK offers compared to our local cancer center but we just don't have the money for the travel costs . So just looking for someone with experience in dealing with this type of thing thanks for the help .
My Dad was DX - 3/19 stage 3 rectal cancer
Folfox - 6/ 2019 threw 10/2019
Rad - 4/ 2019 threw 5/2019
12/ 19 - Abdominal Perineal Resection - Cancer left and permanent colostomy
9/21- Removal of prostate and bladder- Permanent Urostomy still cancer left
5/28/21 - Positive Biopsy Mostly necrotic tumor
6/14/21 - Sepsis with obstructive uropathy needed nephrostomy tube
7/19/21 Kidney infection
7/28/21-Started folfiri
8/3/21 - Blood Clots in lungs and leg
10/13/21 Chemo stopped

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ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: Care at a elite cancer center without traveling to it ?

Postby ginabeewell » Sun Jun 06, 2021 6:56 pm

I think that’s possible - it’s what I do - but I do need to travel occasionally. Before Covid it was once a month. Now it’s more like every few. But MSK does work with NW to tell them what to do for the rounds of chemo I do locally. My scans and surgeries are all in NY however.
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

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beach sunrise
Posts: 1027
Joined: Thu Mar 05, 2020 7:14 pm

Re: Care at a elite cancer center without traveling to it ?

Postby beach sunrise » Sun Jun 06, 2021 9:52 pm

Yes, I have heard of others that are patients at MSK but have treatment elsewhere like Ginas said.
I met a lady last week whose care is thru MDA in TX. I thought that was interesting as well.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

Rock_Robster
Posts: 1021
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: Care at a elite cancer center without traveling to it ?

Postby Rock_Robster » Sun Jun 06, 2021 11:13 pm

Not first hand experience but I’ve known a number of people that do it (particularly with MSK). The main thing however seems to be that they are usually a patient of the main cancer centre (ie had imaging/staging and a treatment plan created there), and then they arrange for a local oncologist/hospital to deliver the treatment. I’ve not known anyone to do it entirely remotely before - ie without ever travelling to and being assessed by the main cancer centre first.
41M Australia
2018 Dx RC
G2 EMVI LVI, 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA 14>2>32>16>19>30>140>70
11/18 FOLFOX
3/19 Liver resection
5/19 Pelvic IMRT
7/19 ULAR
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resection
NED 2 years
11/21 Liver met, PALN, lung nodules
3/22 PVE, lymphadenectomy, liver SBRT
10/22 PALN SBRT
11/22 Liver mets, peri nodule. Xeloda+Bev
4/23 XELIRI+Bev
9/23 ATRIUM trial
12/23 Modified FOLFIRI+Bev

boxhill
Posts: 789
Joined: Fri Apr 06, 2018 11:40 am

Re: Care at a elite cancer center without traveling to it ?

Postby boxhill » Wed Jun 09, 2021 3:35 pm

My cancer center is associated with Dana Farber. Although my oncologist actually sent me there early on for a second opinion, we haven't needed to consult them again. If we did, I think remote consultation would be likely. Just send the scans and so forth.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED


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