Care at a elite cancer center without traveling to it ?

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worriedson714
Posts: 28
Joined: Mon May 03, 2021 4:27 pm
Facebook Username: jasonbeck

Care at a elite cancer center without traveling to it ?

Postby worriedson714 » Sun Jun 06, 2021 3:22 pm

Hello all ,
So I been hearing alot about people getting care threw places like MSK without actually traveling there and am wondering how it all works ? In cases where the patient needs treatment can it happen at a local cancer center with MSK in charge of it ? I would really love to get my dad the kind of treatment MSK offers compared to our local cancer center but we just don't have the money for the travel costs . So just looking for someone with experience in dealing with this type of thing thanks for the help .
My Dad was DX - March 2019 stage 3 rectal cancer
Folfox Chemo - 6/ 2019 threw 10/2019
Radiation - 4/ 2019 threw 5/2019
12/ 2019 - Abdominal Perineal Resection - Cancer left and permanent colostomy
watching and waiting
9/2021- Surgery to remove prostate and bladder- Permanent Urostomy still cancer left
Watching and waiting
5/28/2021 - Positive Biopsy Mostly necrotic tumor
6/14/2021 - Sepsis with obstructive uropathy needed nephrostomy tube
Awaiting Start lifelong chemo
7/19/2021 Kidney infection

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ginabeewell
Posts: 506
Joined: Wed Oct 24, 2018 10:30 am

Re: Care at a elite cancer center without traveling to it ?

Postby ginabeewell » Sun Jun 06, 2021 6:56 pm

I think that’s possible - it’s what I do - but I do need to travel occasionally. Before Covid it was once a month. Now it’s more like every few. But MSK does work with NW to tell them what to do for the rounds of chemo I do locally. My scans and surgeries are all in NY however.
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

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beach sunrise
Posts: 498
Joined: Thu Mar 05, 2020 7:14 pm

Re: Care at a elite cancer center without traveling to it ?

Postby beach sunrise » Sun Jun 06, 2021 9:52 pm

Yes, I have heard of others that are patients at MSK but have treatment elsewhere like Ginas said.
I met a lady last week whose care is thru MDA in TX. I thought that was interesting as well.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

prayingforccr
Posts: 139
Joined: Sun Jun 28, 2020 4:44 pm

Re: Care at a elite cancer center without traveling to it ?

Postby prayingforccr » Sun Jun 06, 2021 10:36 pm

My primary care is at msk, but I have had to go in person several times.

They work with my local oncologist to help me.
Nov 2019: colonoscopy
Dec 2019: diagnosed with stage 3 rectal cancer 6+cm tumor
Jan-mar 2020: 20 sessions of radiation, mon-fri capecetibine, mon-fri clinical trial drug m3814
Apr 2020: tumor/scar 3.7cm
July 2020: began 8 treatmentsFOLFOX
August 2020: ct scan reveals scarbed reduced to 2.7cm CEA is 1.5
Nov 2020: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.
May 2021: Multiple lung nodules (3-6mm) on ct scan

Rock_Robster
Posts: 575
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Care at a elite cancer center without traveling to it ?

Postby Rock_Robster » Sun Jun 06, 2021 11:13 pm

Not first hand experience but I’ve known a number of people that do it (particularly with MSK). The main thing however seems to be that they are usually a patient of the main cancer centre (ie had imaging/staging and a treatment plan created there), and then they arrange for a local oncologist/hospital to deliver the treatment. I’ve not known anyone to do it entirely remotely before - ie without ever travelling to and being assessed by the main cancer centre first.
39M Australia
2018 Dx RC, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0, Mar-20=2.2, May-20=1.9, Jun-20=2.1, Sep-20: 2.1, Dec-20: 2.3, Mar-21=2.5, Jul-21=3.1
11/18 FOLFOX x6
3/19 Liver resection
5/19 25x pelvic radiation; complete met. response
07/19 ULAR w ileo, 1/27 LN+
08/19 Found liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resection
02/20 Ileo reversed
03/20 NED (CT/PET/MRI/scope) - latest scans Jul-21

boxhill
Posts: 730
Joined: Fri Apr 06, 2018 11:40 am

Re: Care at a elite cancer center without traveling to it ?

Postby boxhill » Wed Jun 09, 2021 3:35 pm

My cancer center is associated with Dana Farber. Although my oncologist actually sent me there early on for a second opinion, we haven't needed to consult them again. If we did, I think remote consultation would be likely. Just send the scans and so forth.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
All MRIs NED


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