The end of the road

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brokenwings
Posts: 147
Joined: Mon Jan 07, 2019 1:50 am

Re: The end of the road

Postby brokenwings » Mon Jun 07, 2021 8:39 am

Green Tea wrote:Paola -

I'm so sorry to hear that your peri-met treatments are no longer working. I was hopeful that all your trips to Lyon for treatment would be worth the effort. And it was so disappointing that your difficult cytoreductive surgery / HIPEC procedure did not completely wipe out the peri-mets.

I hope that you are able to have some time now to enjoy whatever time you have left. If you are able to continue to travel now and over the summer, maybe you could plan a trip over to the Alps or somewhere else peaceful, just to get away from the bad weather and chaos there in the Île-de-France and enjoy some quiet serenity.

Whenever I now see a reference in the news to the Gare de Lyon or the A6 motorway, I will think of you and wonder how you are doing. In the past couple of months I noticed that you had been logging in here every other day or so but never posting any messages until finally you started this current thread. It must have been very difficult and heart-wrenching for you to finally decide to post that message.

I'll be thinking of you over the summer and beyond, and will say a prayer for safe journeys wherever you decide to go next.

Take care, and God bless you.


Dear Green Tea,

I'm very moved by the fact that you remember my "journey" in such details. Yes, it is tragic that all the effort, money and time my husband and I invested in my peritoneal treatments didn't pay off the way we expected... Cancer is a cruel foe, always three steps ahead of us...

I spent last week in Corsica and it was beautiful. Coming back home was very difficult though...

If my body cooperates, we'd like to go to Provence for a week ot so... Fingers crossed.

Thank you for your heartfelt words, they mean so much to me.

Hugs.

Paola
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy.
Folfirinox + Avastin: 6 cycles. Scans: partial response.
Surgery (CRS + HIPEC) 04/29: too much disease, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin). 8 cycles
10/31/2019: 11 hour-long Hipec + 6 weeks in hospital
12/30/2019: liver met
02/05/2020: reversal surgery. New peri mets discovered
March 2020: 5fu+Avastin
May 2020: fistula
Back to 1957: 5fu.

AmyG
Posts: 364
Joined: Tue Dec 25, 2018 8:08 pm

Re: The end of the road

Postby AmyG » Mon Jun 07, 2021 5:48 pm

Hey.

I'm so happy to have had the opportunity to share in your journey as well as share mine with you. I wish you and your family peace and comfort with whatever lies ahead.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

brokenwings
Posts: 147
Joined: Mon Jan 07, 2019 1:50 am

Re: The end of the road

Postby brokenwings » Tue Jun 08, 2021 12:13 pm

AmyG wrote:Hey.

I'm so happy to have had the opportunity to share in your journey as well as share mine with you. I wish you and your family peace and comfort with whatever lies ahead.


Thank you, Amy. I'm glad we shared our respective journeys too.
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy.
Folfirinox + Avastin: 6 cycles. Scans: partial response.
Surgery (CRS + HIPEC) 04/29: too much disease, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin). 8 cycles
10/31/2019: 11 hour-long Hipec + 6 weeks in hospital
12/30/2019: liver met
02/05/2020: reversal surgery. New peri mets discovered
March 2020: 5fu+Avastin
May 2020: fistula
Back to 1957: 5fu.

DarknessEmbraced
Posts: 3610
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: The end of the road

Postby DarknessEmbraced » Sun Jun 13, 2021 10:13 am

I hope you will be able to go to Provence. *fingers crossed* I'm glad you enjoyed your time in Corsica.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
Atoq
Posts: 395
Joined: Wed Oct 25, 2017 9:31 am

Re: The end of the road

Postby Atoq » Mon Jun 14, 2021 1:42 pm

I am really sorry to read that you had such a tough time with all the treatments and surgeries. I wish you a wonderful summer. Nobody knows what is ahead.

All the best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED

Caat55
Posts: 685
Joined: Sat Dec 23, 2017 6:01 pm

Re: The end of the road

Postby Caat55 » Wed Jun 23, 2021 1:14 am

I am so sorry that you find yourself on this place in the journey. You are in my thoughts and prayers.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

brokenwings
Posts: 147
Joined: Mon Jan 07, 2019 1:50 am

Re: The end of the road

Postby brokenwings » Sat Jul 03, 2021 6:01 am

DarknessEmbraced wrote:I hope you will be able to go to Provence. *fingers crossed* I'm glad you enjoyed your time in Corsica.


Fortunately, I was able to go to Provence. I enjoyed the sea (again) and was able to see the lavender fields in bloom. It was magical.
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy.
Folfirinox + Avastin: 6 cycles. Scans: partial response.
Surgery (CRS + HIPEC) 04/29: too much disease, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin). 8 cycles
10/31/2019: 11 hour-long Hipec + 6 weeks in hospital
12/30/2019: liver met
02/05/2020: reversal surgery. New peri mets discovered
March 2020: 5fu+Avastin
May 2020: fistula
Back to 1957: 5fu.

brokenwings
Posts: 147
Joined: Mon Jan 07, 2019 1:50 am

Re: The end of the road

Postby brokenwings » Sat Jul 03, 2021 6:03 am

Atoq wrote:I am really sorry to read that you had such a tough time with all the treatments and surgeries. I wish you a wonderful summer. Nobody knows what is ahead.

All the best

Claudia


Thank you. I'm glad I was able to travel these last two months. If everything goes ok, I will be spending a week in a beautiful countryside house (with a pool!) mid July. Keeping my fingers crossed.
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy.
Folfirinox + Avastin: 6 cycles. Scans: partial response.
Surgery (CRS + HIPEC) 04/29: too much disease, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin). 8 cycles
10/31/2019: 11 hour-long Hipec + 6 weeks in hospital
12/30/2019: liver met
02/05/2020: reversal surgery. New peri mets discovered
March 2020: 5fu+Avastin
May 2020: fistula
Back to 1957: 5fu.

brokenwings
Posts: 147
Joined: Mon Jan 07, 2019 1:50 am

Re: The end of the road

Postby brokenwings » Sat Jul 03, 2021 6:04 am

Caat55 wrote:I am so sorry that you find yourself on this place in the journey. You are in my thoughts and prayers.
Susan


Thank you.
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy.
Folfirinox + Avastin: 6 cycles. Scans: partial response.
Surgery (CRS + HIPEC) 04/29: too much disease, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin). 8 cycles
10/31/2019: 11 hour-long Hipec + 6 weeks in hospital
12/30/2019: liver met
02/05/2020: reversal surgery. New peri mets discovered
March 2020: 5fu+Avastin
May 2020: fistula
Back to 1957: 5fu.

DarknessEmbraced
Posts: 3610
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: The end of the road

Postby DarknessEmbraced » Sat Jul 03, 2021 9:24 am

Provence sounds amazing! I'm so happy you were able to enjoy it! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Siti
Posts: 224
Joined: Thu Aug 01, 2019 10:58 am

Re: The end of the road

Postby Siti » Mon Jul 05, 2021 11:35 am

Dear Paola,

So sorry to hear about this but very glad you were able to enjoy the last 2 months in the south of France. Am keeping my fingers and toes crossed that you’re able to spend time in the countryside too!

Warmest wishes,
Siti
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.


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