Pten mutation ?

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worriedson714
Posts: 49
Joined: Mon May 03, 2021 4:27 pm
Facebook Username: jasonbeck

Pten mutation ?

Postby worriedson714 » Mon May 24, 2021 2:31 pm

Hello
Wondering if anyone has cancer with a pten mutation my dad's genetics doctor mentioned MTOR inhibitors as a treatment in theory whatever that means . Research seems to be limited so just wondering if anyone else has this and how was it treated so ?
My Dad was DX - 3/19 stage 3 rectal cancer
Folfox - 6/ 2019 threw 10/2019
Rad - 4/ 2019 threw 5/2019
12/ 19 - Abdominal Perineal Resection - Cancer left and permanent colostomy
9/21- Removal of prostate and bladder- Permanent Urostomy still cancer left
5/28/21 - Positive Biopsy Mostly necrotic tumor
6/14/21 - Sepsis with obstructive uropathy needed nephrostomy tube
7/19/21 Kidney infection
7/28/21-Started folfiri
8/3/21 - Blood Clots in lungs and leg
10/13/21 Chemo stopped

worriedson714
Posts: 49
Joined: Mon May 03, 2021 4:27 pm
Facebook Username: jasonbeck

Re: Pten mutation ?

Postby worriedson714 » Fri May 28, 2021 7:16 pm

No one had a pten mutation ?
My Dad was DX - 3/19 stage 3 rectal cancer
Folfox - 6/ 2019 threw 10/2019
Rad - 4/ 2019 threw 5/2019
12/ 19 - Abdominal Perineal Resection - Cancer left and permanent colostomy
9/21- Removal of prostate and bladder- Permanent Urostomy still cancer left
5/28/21 - Positive Biopsy Mostly necrotic tumor
6/14/21 - Sepsis with obstructive uropathy needed nephrostomy tube
7/19/21 Kidney infection
7/28/21-Started folfiri
8/3/21 - Blood Clots in lungs and leg
10/13/21 Chemo stopped

User avatar
beach sunrise
Posts: 1033
Joined: Thu Mar 05, 2020 7:14 pm

Re: Pten mutation ?

Postby beach sunrise » Fri May 28, 2021 10:05 pm

Hi, I'm sure someone on the forum has just not online.
I will make a suggestion to set up an appt with a Life Extension ND, its free for the first 30 minutes. Have your questions ready before appt and don't get side tracked, keep it business and it shouldn't go over the 30min timeframe. Ask about mTOR inhibitors, Pten kRAS inhibitors, inflammation control, immune support, ect. Have your dads bloodwork in front of you from past to present as reference guide for questions. Record, record record so you can listen later. When I first began consults I couldn't remember everything and some information from the ND's I didn't think was important turned out to be important. As always, just my suggestion here.
Also, Riordan Clinic has free consults, 15 minutes of time I believe.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test


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