Great News!!!

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
cptmac
Posts: 1199
Joined: Mon Nov 19, 2007 3:15 pm
Facebook Username: Dorothy McGrath

Great News!!!

Postby cptmac » Sun May 16, 2021 6:07 pm

Hi everyone,

I wanted to share.

I was supposed to go for my 5 year colonoscopy last year, but, due to Covid, the doctors recommended I wait. Plus, I haven't had a really good physical since 2017, because the last time I went, my Mom passed away. I couldn't bring myself to make the 6 hour drive - for all the memories that would flood back. But I was ready to go back last year.

I was getting a bit nervous, because I've had some friends who delayed appointments and their cancer came back - so I knew I had to go - Covid or no Covid. If Covid didn't get me - my cancer could came back.

So when I went back this year - all the stars aligned. I was able to get my Covid shot and had my second one with more than two weeks to spare before my appt.

I booked my hotel in Feb "Hilton Garden Inn" for less than $70 a night.

My car is a 1995 Corolla, so I got a rental car for a week for $200.

So the drive there was beautiful!!! Sunny skies, leaves were green through the country - and a decked out car with a lot more bells and whistles then they had in 1995.

I was a bit worried about my prep - but I took down notes this year. I can't drink that much and usually throw it up. This year I threw up quite a bit. Normally water comes out at the end, but this time is was gatorade - so I was nervous. I think now that I'm getting older, it's harder for me to keep it down. I mean, it's been 17 years of this.

The PA took notes and wrote in my record to slow my drinking rate to 30 minutes for my next one. Yay!!

So I go in, and all is well!!! YAY!!! And I had a great prep to boot!!! YAY!!!

And then I had my slew of other appts!!! Blood work and everything looks great!!! YAY!!!!

And I'm going to turn 60 this year - with no complaints. I told myself when I was dx'd at 43 - that I looked forward to living and I would have no complaints about getting older. In Jan I was feeling a little funny about it, but I called my friends and let them know they needed to get me something this year for my birthday - even if it was just a birthday card in the mail.

So I'm looking forward to my 60th birthday!!! And better yet, My Mom and I were supposed to watch the Olympics together in 2020 - because it's in Tokyo, where my Mom is from. So they announced that the Olympics will take place the day after my birthday.... Well close enough!!! What a great year 2021 has turned out to be for me. Even more so when you consider I was only supposed to live for 6 months but I could have died at any minute!!!

Celebrate Life I say!!!

Yay me!!!

PS - Thanks for putting up with me and letting me brag about my good fortune!!!
cptmac
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

User avatar
CRguy
Posts: 10317
Joined: Sun Feb 10, 2008 6:00 pm

Re: Great News!!!

Postby CRguy » Sun May 16, 2021 11:42 pm

Yay YOU ????
WELL HELL YEAH sista' :mrgreen: :mrgreen: :mrgreen:

CRC BUTT has been kicked and YOU took names.

YAY you Cappy ... WORD !!!

Always in Harmony
Always on the Journey
Love Peace AND Harmony my friend

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

stu
Posts: 1503
Joined: Sat Aug 17, 2013 5:46 pm

Re: Great News!!!

Postby stu » Mon May 17, 2021 2:44 am

Excellent news !

Your good fortune was someone else’s Hope to cling onto !
I wish you every success and enjoy growing a little older ! It is a priceless !

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Sunnycd
Posts: 54
Joined: Fri Feb 26, 2021 10:36 am

Re: Great News!!!

Postby Sunnycd » Mon May 17, 2021 5:49 am

Congratulations! I was feeling a bit sorry for myself, but you raised my spirits! News like this, is indeed a shot of hope for many, so brag away!
DX Feb. ‘21 CC IIB @ 51
Jan. ‘21 ER surgery, temp. colostomy
Sigmoid, adernocarcinoma
T4aN0MX, G2
0/24 lymph nodes
LVI: indefinite
PNI: not identified
Margins: clear
March ‘21 started 4 rounds of CAPOX
06/17/21 last day of CAPOX
06/25/21 CT scan clear
CEA: @ dx 4, post surgery 1.9, post chemo: 2.9
07/14/21 colostomy reversal

DarknessEmbraced
Posts: 3607
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Great News!!!

Postby DarknessEmbraced » Fri May 21, 2021 12:33 pm

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Siti
Posts: 224
Joined: Thu Aug 01, 2019 10:58 am

Re: Great News!!!

Postby Siti » Fri May 21, 2021 3:54 pm

Thank you so much for sharing your journey! Wishing you a long long wonderful life ahead of you!
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

boxhill
Posts: 730
Joined: Fri Apr 06, 2018 11:40 am

Re: Great News!!!

Postby boxhill » Sat May 22, 2021 9:09 am

Wonderful, wonderful!!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
All MRIs NED

User avatar
edinaman
Posts: 1103
Joined: Wed Oct 26, 2005 10:15 pm
Location: Minnesota

Re: Great News!!!

Postby edinaman » Mon May 24, 2021 12:53 pm

Congratulations!! Positive news is always great to hear. Belated or early happy birthday. I had a colonoscopy in September and all was good. Since we were in the midst of the pandemic, masks were required. I always tell people that until they've been through a colonoscopy while wearing a mask, don't complain about how hard mask wearing is.
It's always good to hear from you.
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

worriedson714
Posts: 28
Joined: Mon May 03, 2021 4:27 pm
Facebook Username: jasonbeck

Re: Great News!!!

Postby worriedson714 » Mon May 24, 2021 10:45 pm

My dad has a biopsy friday the doctors think his cancer has returned radiation could cause small bowl damage chemo carries a bunch of extra risks for him . So hope has been in short supply for me as I have worried about losing my dad alot lately . So I wanted to thank you for sharing your story it's like a injection of hope for me to know this beast can be conquered it really means alot . I wish you continued good fortune and many more great years and feel free to " brag " away it really does give those of us who need some hope alot of motivation .
My Dad was DX - March 2019 stage 3 rectal cancer
Folfox Chemo - 6/ 2019 threw 10/2019
Radiation - 4/ 2019 threw 5/2019
12/ 2019 - Abdominal Perineal Resection - Cancer left and permanent colostomy
watching and waiting
9/2021- Surgery to remove prostate and bladder- Permanent Urostomy still cancer left
Watching and waiting
5/28/2021 - Positive Biopsy Mostly necrotic tumor
6/14/2021 - Sepsis with obstructive uropathy needed nephrostomy tube
Awaiting Start lifelong chemo
7/19/2021 Kidney infection

Punky44
Posts: 484
Joined: Mon Oct 01, 2018 4:29 pm

Re: Great News!!!

Postby Punky44 » Tue May 25, 2021 12:38 am

So happy to hear! Congratulations!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1
Latest update: 6/28/21: Clear CT with CEA 3.1 (attributed to emphysema)

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Bpaint
Posts: 17
Joined: Sun Oct 11, 2020 8:54 pm

Re: Great News!!!

Postby Bpaint » Tue May 25, 2021 10:15 am

That's wonderful! Thanks for sharing.
My husband (age 41 at dx):
8/20 CRC Stage 4. Mets to lungs, liver, distant lymph nodes (25+)
MSS, KRAS wild
CEA 713 at dx
Folfox (12 rounds)
CEA 113
Liver, colon and lymph node resection scheduled for 4/9/21

User avatar
beach sunrise
Posts: 500
Joined: Thu Mar 05, 2020 7:14 pm

Re: Great News!!!

Postby beach sunrise » Tue May 25, 2021 11:24 pm

Thank you so much for the update!
I love stories such as yours. It's what keeps me going and hunting for those answers.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

mymom
Posts: 1293
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: Great News!!!

Postby mymom » Sat Jul 17, 2021 5:26 pm

Happy for you!
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED

User avatar
horizon
Posts: 1623
Joined: Tue Apr 12, 2011 10:10 pm

Re: Great News!!!

Postby horizon » Sun Jul 18, 2021 10:50 am

I missed this when you posted it but so happy for you. For the next prep see if you can get Suprep. You have to drink so much less and I really had a good experience with it.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 10 years NED). Is this real life?

User avatar
Atoq
Posts: 395
Joined: Wed Oct 25, 2017 9:31 am

Re: Great News!!!

Postby Atoq » Sun Jul 18, 2021 12:40 pm

Really fantastic! Thanks for sharing! :D

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 2 guests