Hello,
This is my first post so it will be really long to give an insight.
Jan 2020 my dad got diagnosed with stage 4 colon cancer (adenocarcinoma) with liver mets. He got a stoma, 4 x Folfox, he had a liver surgery then a colon surgery and then from August 2020 8 more chemos with 60% oxaliplatin until Nov. Besides the cancer, my dad has MS and got 2018 and 2019 Lemtrada/alemtuzumab to sto the MS.
2017/18 he had a negative colonoscopy...
The whole year 2020 the treatment with optimal. Nothing to worry.
They did a PET because there was something that concerned the doctors. There was a liver met. In Feb 2021 he had his next liver surgery.
Now comes the bad thing. 14th April he had MRI that showed several liver mets (6). They decided to treat him with TACE. After the TACE they did a MRI to check if everything is fine. The mets doubled in their size. One grew 18mm. It was the 30th April so only 16 days.
Also the doctors were negatively surprised...
A week later he got 2nd TACE and folfiri with avastin. My Papa in general feels good.
The doctors are now rechecking biopsies etc. They will test for NRTK and do foundation one testing.
I am writing to maybe get to know someone who had that fast growing cancer as well.
My Papa is 57, adenocarcinoma stage 4 with liver mets,KRAS G12V, BRAF WT, HER 2 neg, MSS, positive family history.
No medication, chronic disease MS.
Cancer was G2, PN1, rest okay.
We are getting treatment in Germany and I hope I did not forget something.
Maybe someone scrumbled about something similar or has experience. I would be grateful.
Tueffel