Anxiety Is High, Just Had CT Scan, Year and a half out

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Posts: 38
Joined: Thu Nov 01, 2018 6:10 pm

Anxiety Is High, Just Had CT Scan, Year and a half out

Postby Deep » Sat May 15, 2021 11:13 am

Well, not sure if I should be worried or not. I feel worried. My mind is telling me to be worried. Just had my year and a half cancer ct scan. I lost 50 lbs between my last ct scan and now. I continue to lose weight. I changed up my diet and have to now remind myself to eat daily. I never get hungry. I just started a new job and cancer returning would destroy what I got going on. Please anyone, is my reaction normal here? Might just need to calm down a bit.
11/29/18 Diagnosed T3N1 Rectal Cancer (Age 39, Male, no family history)
01/02/19--02/7/19--- 25 rounds radiation/chemo (Capecitabine 2000 mg)
04/15/19 Surgery, temp ileostomy (Tumor Staged T2)
7/8/19-10/15/19 Chemo (8 Rounds) Folfox
11/12/19- Scan NED

Nor Cal
Posts: 17
Joined: Sun Dec 06, 2020 8:18 pm

Re: Anxiety Is High, Just Had CT Scan, Year and a half out

Postby Nor Cal » Sat May 15, 2021 3:35 pm

I've had 4 CT scans and an MRI since I began treatment, and each time every ache or pain or missed meal was a sign that something terrible was going to turn up. Then the scans were fine. Just gotta stay positive, get the results, and go from there.
Dx June 2020, stage IV, w liver mets in both lobes. M, age 50. Right-sided colon tumor. BRAF mutation. CEA 120
7-12/20 9 cycles FOLFOXIRI (plus Avastin cycles 2-6)
CEA 2.9
12/20 radioembolization (right lobe) cea 2.0
1/21 chemoembolization (left lobe)
2/21 chemoembolization (left lobe)
1-6/21 6 cycles FOLFIRI + Avastin

Posts: 719
Joined: Fri Apr 06, 2018 11:40 am

Re: Anxiety Is High, Just Had CT Scan, Year and a half out

Postby boxhill » Sun May 16, 2021 11:19 am

I'd say yes, unfortunately your feelings are totally normal! :)

And yes, you probably do need to find some way[s] to calm down. :) Venting to people here, who totally understand scanxiety, is one good way.

Regarding your weight loss and lack of appetite, some of us could stand to lose 50 lbs and not be too skinny, others not so much. Obviously I don't know where you fall on that spectrum, but I do know that ongoing lack of appetite is concerning for nutritional reasons, if nothing else. Have you talked to any of your doctors about it? There are people here who can make suggestions, maybe medical marijuana?

Good luck!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key

Posts: 80
Joined: Mon Jun 29, 2020 3:38 pm

Re: Anxiety Is High, Just Had CT Scan, Year and a half out

Postby I_will_fight » Mon May 17, 2021 9:35 am

Going through the same... expecting scan results today. Fearing something is wrong.

To the OP, I lost 25 pounds of weight in the short time between diagnosis and surgery just due to anxiety. I tried to eat, but was not hungry. Aprehension satted my appetite.
46 yo male Spain
06/20 - 6cm T3N0M0 CC splenic flex
No liver mets, 3 and 4 mm lung dots (unlikely to be mets)
lymp 0/37
MSH6- other MMR+
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, 13cm clear margins, optimistic surgn.
08/20 - CAPOX regime, 4 cycles.
11/20 - CAPOX completed. CAT scan: lesion in liver, suspect hemoangioma, no changes lung dots.
12/20 - Clean colonoscopy
02/21 - MRI liver lesion is nonspecific, stable.

michelle c
Posts: 1920
Joined: Wed Dec 02, 2009 3:58 am

Re: Anxiety Is High, Just Had CT Scan, Year and a half out

Postby michelle c » Tue May 18, 2021 2:06 am

It’s very normal to be anxious and fear the worst.

All the best for your results. Try and relax, cancer takes so much away from us as it is. Sending positive vibes your way x
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

Posts: 3593
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Anxiety Is High, Just Had CT Scan, Year and a half out

Postby DarknessEmbraced » Sat May 29, 2021 9:35 am

It's natural to worry. I hope you get good scans.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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