Day 1 is FOLFOX only, FOLFIRINOX is next as of session 2.
ok Day 1 is in the books, here's a summary:
15 minutes meeting with the Chemo Teach nurse. Was supposed to be 45 min but since the port was going in at 9, we had to cut it short. Fortunately, thanks to information from this board (Green Tea!
)I had a bunch of pointed questions that surprised her and made the 15 minutes very effective. Namely
- We will manage the oaxaliplatin in case of severe neuropathy. I work on a computer, not being able to do that would be really bad
- Got Zofrane in the premed and also prescribed for later (days 3,4)
- I will get EMLA cream prescribed for the next session
- Tylenol over Advil for the first week due to the port healing
- I've been taking Vitamin D3 and Melatonin, this is ok and no concern wrt conflict with chemo.
- Picked-up imodium, would go to lomotil once the second phase starts.
- We can go to Emend if nausea gets worse.
After the teach session, we rushed to intervention to get the port put in. another screw-up on my part here, i had coffee and a cookie. This meant very little sedation. it was uncomfortable but manageable.The most uncomfortable thing was the novocain injections. The port went in after 25 minutes, we left it attached so I can go right away get chemo.
Chemo was relaxing, i got the port hooked up to receive Leucovorin and Oxaliplatin at the same time for 2 hours. Then I got a 5-FU 'push", then I got the little pump hooked up for 46 hours. i was there for 4 hours, worked some, dozed some.
In terms of impact, i am sleepy, mostly because I didn't sleep last night. I was hungry getting home and devoured dinner. I did get the shards in your throat drinking almost room temperature water. Other than that, day one was manageable.
The port is sore and uncomfortable, once it heals I am sure it won't be a problem.
That's my day, sorry it sounds like a stream of consciousness. I'll clean it up at some point.