The Colon Club

Sunnycd wrote:Ginabeewell, I’ve been checking this post every so often to see if there is an update. Hope you are doing well, enjoying lots of healthy foods, and the Hawaiian sun.

We are indeed in Hawaii! On the Big Island at the Mauna Kea, and having a lovely and relaxing time. We swam with dolphins this morning! Leaving tomorrow, but we had 10 nights here; we have never had that many days off at once together!

Scans at MSK next week; trying to keep my mind off them for now, while at the same time figuring out paths of action and whether radiation or anything else could be an option...

So glad you had a nice time. Best of luck on your scans at MSK! Keep us posted...I know that I am among many others here rooting for you every step of your journey.

Fantastic!! We're leaving for Utah tomorrow. No swimming with dolphins but looking forward to it anyway. Good luck with the scans, I hope they come back clear!

Well it looks like the maybe-something was in fact something.

It’s a little bigger; and my CEA doubled to 3.6.

Dr K wants me to resume chemo but also thinks it can be ablated. So hopefully not too many more cycles; depends when we can schedule the ablation.

I’m glad you had a great time in Hawaii! Sending you strength to get through this setback <3

Thanks for updating us. And I'm glad that you've been having such a lovely time!

Sending positive energy that the ablation can be done soon and is effective.

Hopefully just a bump on your road to NEDness!

Gina,

I am so sorry it just won't go away. I am in the same boat, just when I thought I could take a break as like you I don't want to do chemo for the rest of my life, it keeps coming back. I am just at my wit's end. It so hard to decide what to do sometimes and such. Never give up, that's what I hear all the time and I don't want to, but chemo is so hard. Right now I am going to do my 3rd round of folfiri next week, I told the onc I need to get one more extra week, so thats 4 weeks then get chemo since my 2nd round. I get it once every 3 weeks. We might do 4 of 5 rounds then rescan and see where we are at.

But I get it, I feel you and I wish that things could just get better for us. Keep up the fight, all we can do and never give up. I know its hard, I have contemplated giving up and just say F it. Let it play out and whatever happens happens, but then I think of my kids and family and I want to fight to be here with them until all my resources are extinguished, but its hard as F!!. Chemo is so hard. I also run a business so its hard, for that 5 days I am down from chemo and sometimes, runs into the next week.

Riki