Achilles Torn wrote:Hi Catstaff,
I had a surgery in Sept 2020 to remove Para-aortic lymph nodes. First PET scan after was clear but my most recent in February showed more lymph nodes active. They would only do the surgery because they believed they had a chance to remove all the cancer (sadly not so). It does and can happen though.
I had good results with a very tolerable maintenance chemo of Capecitabine and Bevacizumab for 3 years before the surgery.
I am hopeful you find your way to surgery and perhaps a better result than I had.
catstaff wrote: Other types of resectable mets are routinely removed, but our local hospitals don't do so for lymph nodes. I am also considering a request to go to a larger cancer center than our local one.
catstaff wrote:Achilles, I followed your case. I was encouraged that you were able to have the surgery and disappointed that it didn't work out for you. I hope you stay stable on maintenance chemo. Hubby had a G3 mtKRAS primary which was very resistant to FOLFOX, so it's unclear that maintenance chemo would help him.
Siti, I think the recurrence is sufficiently isolated, and the mets small enough, that they are planning SBRT on the two nodes as well as the spine. I'll know more when we meet with the oncologist week after next. They used EBRT on the original PALN. We'll have to see what his CEA is afterward--it is apparently an excellent marker for him. If it's low and stays low, we may be able to delay FOLFIRI.
I may be able to work out something with them for the spinal met since as I understand it, chemo doesn't reach those well
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