Colon cancer research study - $100

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ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Colon cancer research study - $100

Postby ginabeewell » Thu Feb 25, 2021 5:07 pm

For anyone who is interested in participating in an hour-long survey, they are recruiting colon cancer patients (and maybe caretakers too). I'm going to sign up to speak with them next week, so I will let you know how it goes.

Here is a sign-up link if you are interested!

https://gigs.savvy.coop/colorectal/?r=gjaco
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

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ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: Colon cancer research study - $100

Postby ginabeewell » Wed Mar 03, 2021 7:08 pm

I did an interview today - took about 40 minutes and probably only took that long because I was long winded.

Lots of talk about pain points during the cancer journey and thoughts regarding how to better address. Hopefully will lead to better patient experiences - and I got some pocket money besides!
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: Colon cancer research study - $100

Postby Gravelyguy » Thu Mar 04, 2021 6:57 am

Thanks Gina for the heads up!

I also was interviewed. It was pretty painless and hopefully will lead to some help for those traveling this path in the future.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

I_will_fight
Posts: 148
Joined: Mon Jun 29, 2020 3:38 pm

Re: Colon cancer research study - $100

Postby I_will_fight » Thu Mar 04, 2021 7:22 am

Thank you for the information.
You need to be a US resident, apparently.
46 yo male Spain
06/2020 - 6cm T3N0M0 CC splenic flex
3 and 4 mm lung ground glass
lymp 0/37
dMMR MSH6
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, optimistic surgeon.
11/20 - 4 x CAPOX completed.
12/20 - Clear colonoscopy
02/21 - MRI liver lesion unchanged.
11/21 - Clear CT
02/22- Colonoscopy: Sessil polyp 3mm
05/22- Clear CT
06/22- Negative Signatera
12/22- Negative Signatera
01/23- Clear CT
07/23- Clear CT, normal markers.
09/23 - Negative Signatera
01/24 - Clear CT

User avatar
ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: Colon cancer research study - $100

Postby ginabeewell » Thu Mar 04, 2021 12:13 pm

I_will_fight wrote:Thank you for the information.
You need to be a US resident, apparently.


Thanks for letting folks know - I was not aware of that!
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts


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