I got my chemo curls in 2020 *

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mobrouser
Posts: 161
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

I got my chemo curls in 2020 *

Postby mobrouser » Fri Jan 01, 2021 8:03 pm

They showed up in March, 18 months after finishing chemo. It was a surprise.
Our family has been so very lucky, we are all still working and no-one has tested positive. Our social lives have been very quiet but then again I didn't mind not having to get together with the in-laws. They probably feel the same about me. :roll: :P

Happy New Year all, and strength on the journey.
CC Dx 102017 age 58
Lap. right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX start Jan/18 end Aug/8 (felt like a year)
CEA - 01/15/18-2.8; 07/29/18-5.3; 09/19-2.4; 03/20-2.7; 09/20-2.9
CT scan 08/18 - Clear; 10/19 - Clear; * 10/20 - 8mm & 6mm nodules in liver
PET scan 09/18 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

stu
Posts: 1549
Joined: Sat Aug 17, 2013 5:46 pm

Re: I got my chemo curls in 2020 *

Postby stu » Sat Jan 02, 2021 4:11 am

:D Your post made me laugh . Enjoy the curls !
2020 has had a few benefits too!

Happy New Year to you and your family ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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mobrouser
Posts: 161
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

And a liver resection in 2021

Postby mobrouser » Sun Jan 02, 2022 9:18 pm

Fast forward from January 1, 2020….
March 2020 CEA 2.7.

August 2020 - scan shows new lesions in the right lobe of the liver so an MRI was scheduled.
Sept 2020 CEA 2.9

Sept 2020 MRI was not definitive other than to confirm there were new spots on the liver that had not been seen before. Oncologist tells me they could be cysts, hemangioma, or metastases. All were under 1 cm so it was decided to wait and have a repeat MRI in March 2021.

April 2021 CEA 3.3

MRI April 2021 showed growth in one lesion from 0.5 cm to 1.5 cm, the other two were unchanged. This was the prompt for me to start the Covid vax process, as it was obvious that something had hit the fan.
Biopsy May 2021 confirmed met in section 8 with ultrasound showing growth to 1.9 cm.
Phone consult with liver surgeon’s team followed by an in-clinic consult with the surgeon in June. Liver resection was scheduled for Monday, July 12, 2021 and the surgeon also requested a colonoscopy be done prior to resection. The only day it could be scheduled was July 9th. Colonoscopy was clear.

Plan for resection was to start laparoscopic, with the possibility of going to open. No anticipation of follow up chemo, as surgery should remove all cancer. I volunteered to participate in the HeLiX (Hemorrage During Liver Resection: traneXamic Acid) https://webapps.cihr-irsc.gc.ca/cris/detail_e?pResearchId=9345869&p_version=CRIS&p_language=E&p_session_id=1333597 trial. My two previous surgeries required transfusions during surgery so I am a good guinea pig…

I woke up in the ICU and could tell by the pain that I’d had open resection. I really didn’t want to lose my gall bladder. Spent the night in ICU and moved to a regular bed on Tuesday. I could picture Ginabeewell’s avatar in my head as I remembered her encouragement to all here to start walking asap after surgery. So I did. Thanks Gina! I also thought about Stu’s Mum and her recovery from losing such a large portion of her liver. Thanks Stu!
Pathology had tumour at 2.2 cm. Home on Friday, but by Sunday I could tell something wasn’t right. Several set backs over the next 2 months included a 25lb weight loss, a partially collapsed lung due to pleural effusion, and 7 weeks with a drain to relieve a bile leak. But by October 1 I was somewhat back to normal.

November 2021 CEA 2.0
Scan on December 10th shows that there is still a small collection of bile in the abdomen, and the lung has not reinflated. I’m not surprised as I still don’t feel the same as pre surgery.

Reflections after all this:
Do not have a colonoscopy three days before major surgery. I was not as strong as I should have been going in to the resection. Not likely to have been the cause of my issues, but it didn’t help. Talk to the anaesthesiologist prior to surgery. I did. We reviewed my experiences after my colon resection and came up with a plan for how my arms were to be placed so that I had no stiffness when I woke up. Extra care for eyes as well so that I didn’t wake up with dry eyes. According to the surgical notes I lost almost 1.5 litres of blood during surgery. I’m going to guess that I got the placebo in the HeLiX trial. I’ll find out in another two years or so.

Most importantly, the 15+ years of experiences shared on this board are so appreciated. Thanks to everyone who has spent the time to share their histories and comments.

Happy New Year all, and strength on the journey.
CC Dx 102017 age 58
Lap. right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX start Jan/18 end Aug/8 (felt like a year)
CEA - 01/15/18-2.8; 07/29/18-5.3; 09/19-2.4; 03/20-2.7; 09/20-2.9
CT scan 08/18 - Clear; 10/19 - Clear; * 10/20 - 8mm & 6mm nodules in liver
PET scan 09/18 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

User avatar
ginabeewell
Posts: 522
Joined: Wed Oct 24, 2018 10:30 am

Re: I got my chemo curls in 2020 *

Postby ginabeewell » Sun Jan 02, 2022 11:45 pm

Thanks for the update - although I groaned several times on reading it, remembering how fun it is to deal with fun like that - I feel like I had quite a few of your same complications during my last surgery.

And a big thanks for your walking call out, I had no idea how much I needed that until I saw it and it changed my whole mood. I have scans on Tuesday - I’m supposed to fly tomorrow, but a PCR confirmed I have Covid after several days of symptoms. So I’m sitting her in a mix of feeling sick, tired, scanxiety, and everything else.

Most days I can stay positive, but after a few days of feeling sick again I really really want to stay well!!!

Sorry for that tangent, but hopefully underscored the impact of your post.

Have you learned to deal with your chemo curls yet? Today I tried to dry mine straight, because they are only half curly. Suffice to say that was a mistake which didn’t exactly help my current mood..! That said, I fell onto a Curly Girl Method group on Facebook and I may be moderately obsessed.
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

roadrunner
Posts: 204
Joined: Sun Jan 12, 2020 8:46 pm

Re: I got my chemo curls in 2020 *

Postby roadrunner » Mon Jan 03, 2022 12:35 am

Great good luck to you both, and may this new year give you strength and health!

Gina: I hope you get through the COVID rapidly and unscathed. I feel sure you will. Made me think of a corollary to my injunction to my kids (“Don’t get cancer!”): “Don’t get cancer, but if you do, don’t get cancer during a pandemic.” Ah, well. Looks like we all blew that. As I said, sending strength your way!
7/19: Rectal cancer: Staged as IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.
8/22 -10/14 4 rounds FOLFOX neoadjuvant, 3 w/Oxiplatin (side effects/reduced size est. 70-75%)
neoadjuvant chemorad 11/19
4 rounds of FOLFOX July-August 2020
ncCR found 10/20; biopsies negative
TAE 11/20, small amount of tumor removed, lung nodules orig id’d 6/20 stable Nov 2020
Chest CT 3/30/21 small growth in 2 nodules (3 and 5mm)
VATS 12/8/21 to remove sub-pleural met 7mm. Considering SBRT for remaining nodule.

stu
Posts: 1549
Joined: Sat Aug 17, 2013 5:46 pm

Re: I got my chemo curls in 2020 *

Postby stu » Tue Jan 04, 2022 4:15 am

Hi ,
Sorry to read you had to have more surgery . That was a bump on the road for sure but so pleased to hear you were able to use the experience of others to motivate you through .
I used to have people in my mind that gave me direction and in turn passed that onto mum . In fact it was someone here who talked me through the whole lung surgery aspect . The power of sharing on a forum .

Hope you are well on your road to full recovery .
Take special care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

boxhill
Posts: 767
Joined: Fri Apr 06, 2018 11:40 am

Re: I got my chemo curls in 2020 *

Postby boxhill » Tue Jan 04, 2022 3:05 pm

Wishing you a less eventful year ahead. Medically, that is! Just nice, calm, painfree healing.

And good hair days galore!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
6/20 Stop Key
All MRIs NED

User avatar
mobrouser
Posts: 161
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: I got my chemo curls in 2020 *

Postby mobrouser » Wed Jan 12, 2022 9:56 pm

Thank you everyone for the support. I had a phone appointment with the liver surgeon last week to review December's scan which has left me feeling somewhat disappointed. Liver has recovered nicely, no sign of new stuff, but I am still struggling with the lung issue which does not seem to interest her. So I guess I will have to make an appointment with my GP.

My hair is a mess, but that's for another post...

Gina, how are you doing? I hope you have recovered and are on your daily walks.

Take care everyone.

mob 8)
CC Dx 102017 age 58
Lap. right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX start Jan/18 end Aug/8 (felt like a year)
CEA - 01/15/18-2.8; 07/29/18-5.3; 09/19-2.4; 03/20-2.7; 09/20-2.9
CT scan 08/18 - Clear; 10/19 - Clear; * 10/20 - 8mm & 6mm nodules in liver
PET scan 09/18 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

bitchslapped
Posts: 1537
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: I got my chemo curls in 2020 *

Postby bitchslapped » Fri Jan 14, 2022 7:49 pm

Wow, Mob, you've sure had a time of it. Sorry to read this. Sounds like it's time to bring a pulmonary specialist onboard.
And that bile needs some place to go, btw. What is the plan to keep an eye on that? No plan? Oh really? I think NOT. Any talk of possible stent if bile continues to build up? Consider a top-notch gastro doc w/hepatic focus & possibly a doc of infectious disease might be added to your short list. Don't wait for these doctors...PUSH. Backed up bile can be a recipe for infection-in-waiting.

As far as the hair...that's what clips are for & call it good :wink: :D

(Tell me you haven't missed me :P :lol: :mrgreen: )
Keep on it, Sister.

Best Wishes

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia


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