A chemo break for Christmas!

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ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

A chemo break for Christmas!

Postby ginabeewell » Sat Dec 19, 2020 12:22 am

I’ll update in my journal too - but I’m excited enough to warrant a new post.

I had stable scans in August and October and my latest this week at MSK (we drove from Chicago!).

My CT was stable again. When I met with Dr Kemeny, she was pleased, especially because the last 4 cycles I’ve just done 5FU and Vectibix. She said she thought I should continue.

Really? After 3 stable scans and 14 cycles of chemo?

I told her I didn’t want to be on chemo forever - you won’t be, she told me, but maybe a little longer. She thought two more months and then a PET scan.

Then she looked at me and asked when is the last time I had eaten?

She scheduled me for a PET the following morning, and we got the word today: it was normal and she thinks it’s fine to stop chemo.

I have an appt at NW on Monday; hope to talk with them about how best to monitor going forward. She said the “most likely” outcome is that the cancer will come back - perhaps true, but if I believed statistics, I would be dead already! And I sure am happy about a chemo break for Christmas!
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: A chemo break for Christmas!

Postby Gravelyguy » Sat Dec 19, 2020 11:03 am

That is a wonderful Christmas present Gina! Enjoy your holidays!!!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

Rikimaroo
Posts: 436
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: A chemo break for Christmas!

Postby Rikimaroo » Sat Dec 19, 2020 11:17 am

That is an awesome early Christmas Present Gina!! Very happy things are looking great.
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.

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beach sunrise
Posts: 1041
Joined: Thu Mar 05, 2020 7:14 pm

Re: A chemo break for Christmas!

Postby beach sunrise » Sat Dec 19, 2020 1:46 pm

Thank God for stable scans!!! You have worked so hard to get to this!!! Enjoy Christmas with family and heres to more stable scans.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test


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