Postby boxhill » Tue Jun 09, 2020 11:06 am
I just want to circle back to what you told the oncologist when he asked you what your goal was. You said "some time," or "a chemo break." This is not the answer of a person who wants to work towards NED. I'm not criticizing you AT ALL. It is pretty clear that you and your mother had been told that nothing else was possible. And there is no doubt that for many people that is realistic, unfortunately. It is a perfectly reasonable goal, depending on the circumstances.
I think you might want to revisit this with the doctor. Getting at least one additional opinion may be the first step toward having a better idea whether there are other possibilities for your mother. You can tell him that in retrospect you answered without having enough information about the alternatives. Or not, if she wishes.
I admit that I am a little mystified by the absence of your mother's opinions and volition in this. I know you are a loving daughter, but what does SHE think? As a now-67 yr old, I cannot imagine leaving decision-making to my son OR husband. But of course we are all different. Best to you and your mother.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED