Mohrfamily wrote:Has anyone ever had a negative effect of HAI DH keeps on believing that his liver has regrown and added tumors (before even seeing a new scan)
I think it's too easy to make wild speculations before seeing the latest CT/PET scan results. All that stress and worry isn't good for him or for you. Just try to put everything on hold until you get back the scan results.
HAI therapy is usually (at least at MSK) highly monitored, so if they thought it wasn't working, or that there was an issue, they'd check it out immediately. I'm surprised no one ordered a new scan before now. It's not impossible that his new liver grew tumors, but it would mean the FUDR wasn't working at all, and they should have known that before now. The odds are it's from a lack of systemic chemo since he hasn't had it for awhile.
Also, you might comment to his new doctor that your DH is very concerned about the rise in his CEA. That might encourage the oncologist to shuffle their schedule a bit and expedite things to get the results to you sooner.
Hope you get a new plan soon!
Juliej