Was diagnosed with Stage 3B after surgery on 7/19. They took a total of 48 nodes and only 1 was affected. Odds were 80% 5 year DFS with or without chemo, so I chose not to. Decided to change my diet to completely Vegan. My pre surgery CEA level was 1.2NL
Had CT scans in August due to abdominal pains around the anastamosis site. All were completely normal.
Met with my oncologist on 11/3 for CEA 2.5NL and joked about having pain on my right side, saying it must be liver metastases right, she said it would be much too early for that to be happening.
Well FF to 11/23, I had what I thought was some blood in the stool, and went to the ER. All blood work was fine, but when he opened the door to tell me the results of the CT I could tell it wasn't good Multiple liver mets.
Had a MRI on 12/3 which confirmed 35 liver mets with the largest being 2cm. Most are very small. My liver function is still completely normal, but my latest CEA test on 12/10 was 4.5NL, so a slow and steady rise.
Had my port placed on 12/11 and a liver biopsy on 12/12 to confirm it was the same type as before(it was).
Right now I am not resectable and just started Folfox with on 12/17 with Avastin on 12/19. I asked my oncologist(had to change, my first moved to Florida) about the HAI pump but he dismissed it as being obsolete. Being on this forum I just dont think thats the case.
I would love to here some success stories and similar situations to mine. It took me a couple of weeks(and Lexapro) to get past the dark feeling sorry for myself place, and now I am ready to fight.
Thanks in advance.