camicom wrote:Right now I am not resectable and just started Folfox with on 12/17 with Avastin on 12/19. I asked my oncologist(had to change, my first moved to Florida) about the HAI pump but he dismissed it as being obsolete. Being on this forum I just dont think thats the case.
When I was first diagnosed with Stage 4 and a liver covered in mets, I had three oncologists all tell me they would put me on chemo and try to keep me alive for a year or two, then hope medicine offered something better in the future. None of them mentioned or wanted to discuss the HAI pump or even the chance of surgery. I know now looking back that they thought I had a snowball's chance in hell of ever getting to operable.
I found a fourth oncologist who was willing to talk to me about what it would take to get a cure. She was also open to me speaking with Dr Kemeny at MSK about the HAI pump, and was honest about the fact that she felt that Dr K "had a singular skill set" that was unlike anything she or anyone else at Northwestern could offer. They, like many centers, do offer the HAI pump, but I do think doctors are human - they have a tendency to recommend what they know. Your doctor wouldn't be the first to downplay what the pump can do. Then again, I find myself sometimes wondering if the results of the HAI pump at MSK are driven by the pump or Dr Kemeny. It's probably a combination of both!
At any rate, i responded well to the initial rounds of chemo. The HAI pump actually didn't shrink my tumors further, but the initial decrease was enough that an MSK surgeon was willing to do two resections on me to remove the tumors. The pathology was 99% dead, so my sense is that the pump did help, and my hope is that it will protect me from relapse.
I am still recovering from my last surgery, and once that happens I will start mop up chemo. I feel a long way away from the "year or two" prognosis I got a little over a year ago. Just hoping it stays that way!