Six years today!

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Buxton
Posts: 30
Joined: Fri Feb 28, 2014 4:34 am

Six years today!

Postby Buxton » Tue Nov 12, 2019 4:50 pm

Hi. It's been a while since I've been here, but want to share my encouraging news. Six years today since my emergency extended right hemicolectomy. The magic 5 years was reached with the usual anxiety but all was well. Hugs and flowers time from and to my wonderful nurse. BM's are 'variable' but not helped by losing my gall bladder I suppose. That's the encouraging bit. Shingles, Intermediate Favourable Prostate cancer and resulting radiotherapy to take over from the bc. is a bit depressing, but ... Best wishes to you all. John.

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Six years today!

Postby CRguy » Wed Nov 13, 2019 1:30 am

One step at a time buddy
AND we keep on .... keepin' ON !!

Best wishes to you moving forward on the Journey

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Six years today!

Postby DarknessEmbraced » Wed Nov 13, 2019 5:18 pm

I hope your radiation treatments go well!*hugs* Congratulations on six years! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

MeAndMine
Posts: 149
Joined: Mon Aug 05, 2019 2:40 pm

Re: Six years today!

Postby MeAndMine » Wed Nov 13, 2019 6:21 pm

Congratulations on that milestone!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

Buxton
Posts: 30
Joined: Fri Feb 28, 2014 4:34 am

Re: Six years today!

Postby Buxton » Wed Nov 13, 2019 7:01 pm

DarknessEmbraced wrote:I hope your radiation treatments go well!*hugs* Congratulations on six years! :)

Thanks Darkness Embraced. Yes the treatment was ok, in January. Side effects passed in time. The first PSA test showed a good drop but the second one three months later was a very small drop of .2, but specialist was ok with that. I have to wait 6 months until the next one. Good to hear from you and hope you are doing well.

Buxton
Posts: 30
Joined: Fri Feb 28, 2014 4:34 am

Re: Six years today!

Postby Buxton » Wed Nov 13, 2019 7:02 pm

MeAndMine wrote:Congratulations on that milestone!

Thanks MeAndMine.

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Six years today!

Postby DarknessEmbraced » Thu Nov 14, 2019 10:36 am

I hope your PSA continues to drop! *fingers crossed* I'm glad the side effects passed in time. I've still been having my usual post surgery stomach issues. Also I still get ischemic colitis attacks but since my GI had me start a daily low dose coated aspirin I haven't had an ischemic colitis attack with bleeding.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Buxton
Posts: 30
Joined: Fri Feb 28, 2014 4:34 am

Re: Six years today!

Postby Buxton » Mon May 24, 2021 3:59 am

And a rare update. I’m now 7 1/2 years since bowel surgery. Continuing ‘variable bowel movements.’ Possibly that’s normal for me now especially after gall bladder removal. Prostate cancer seems under control with 0.83 psa in March, down from 1.5. COVID seems under control here, but who knows. No jabs yet but can’t be long now. Best wishes to all.

I_will_fight
Posts: 148
Joined: Mon Jun 29, 2020 3:38 pm

Re: Six years today!

Postby I_will_fight » Mon May 24, 2021 5:49 am

Buxton wrote:And a rare update. I’m now 7 1/2 years since bowel surgery. Continuing ‘variable bowel movements.’ Possibly that’s normal for me now especially after gall bladder removal. Prostate cancer seems under control with 0.83 psa in March, down from 1.5. COVID seems under control here, but who knows. No jabs yet but can’t be long now. Best wishes to all.


Oh, wow, a 7.5 years cancer journey!

Congratulations, thanks for the update and good luck with your prostate.
46 yo male Spain
06/2020 - 6cm T3N0M0 CC splenic flex
3 and 4 mm lung ground glass
lymp 0/37
dMMR MSH6
KRAS mt G13D
V/LNI absent
PNI present
07/20 - hemicol surg, optimistic surgeon.
11/20 - 4 x CAPOX completed.
12/20 - Clear colonoscopy
02/21 - MRI liver lesion unchanged.
11/21 - Clear CT
02/22- Colonoscopy: Sessil polyp 3mm
05/22- Clear CT
06/22- Negative Signatera
12/22- Negative Signatera
01/23- Clear CT
07/23- Clear CT, normal markers.
09/23 - Negative Signatera
01/24 - Clear CT

Buxton
Posts: 30
Joined: Fri Feb 28, 2014 4:34 am

Re: Six years today!

Postby Buxton » Mon Oct 04, 2021 2:21 pm

I_will_fight wrote:
Buxton wrote:And a rare update. I’m now 7 1/2 years since bowel surgery. Continuing ‘variable bowel movements.’ Possibly that’s normal for me now especially after gall bladder removal. Prostate cancer seems under control with 0.83 psa in March, down from 1.5. COVID seems under control here, but who knows. No jabs yet but can’t be long now. Best wishes to all.


Oh, wow, a 7.5 years cancer journey!

Congratulations, thanks for the update and good luck with your prostate.


October now. Psa can be yearly. Happy! COVID has reappeared in the north of the country and now there is some urgency to increase the % of vaccinations. (I’ve had my two. Very few side effects.) Best wishes.

Buxton
Posts: 30
Joined: Fri Feb 28, 2014 4:34 am

Re: Six years today!

Postby Buxton » Sat Feb 26, 2022 6:46 pm

Buxton wrote:
I_will_fight wrote:
Buxton wrote:And a rare update. I’m now 7 1/2 years since bowel surgery. Continuing ‘variable bowel movements.’ Possibly that’s normal for me now especially after gall bladder removal. Prostate cancer seems under control with 0.83 psa in March, down from 1.5. COVID seems under control here, but who knows. No jabs yet but can’t be long now. Best wishes to all.


Oh, wow, a 7.5 years cancer journey!

Congratulations, thanks for the update and good luck with your prostate.


October now. Psa can be yearly. Happy! COVID has reappeared in the north of the country and now there is some urgency to increase the % of vaccinations. (I’ve had my two. Very few side effects.) Best wishes.


Just over 8 years now. Psa (prostate) up slightly to .99. Nobody seems bothered but Dr wants 6 monthly tests. Omicron taking off here with thousands of new cases daily. I’ve had my booster jab, hope it helps!

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JJH
Posts: 408
Joined: Mon Apr 24, 2017 7:26 am

Re: PSA monitoring

Postby JJH » Sun Feb 27, 2022 12:09 am

Buxton wrote:...PSA (prostate) up slightly to .99. Nobody seems bothered but Dr wants 6 monthly tests...

John,

It's good that your doctor wants 6 monthly PSA tests. This is what is needed in order to properly monitor for out-of-range and accelerating PSA levels over time.

These sequential PSA tests need to be done in the same lab with the same equipment and with the same assays, otherwise the results will not be comparable. And, of course, you need to know what the PSA normal-range limits are for your particular lab.

More information on PSA monitoring and prostate treatment can be found near the bottom of the following post:

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=63819&p=510779#p510779
"The darkest hour is just before the dawn" - Thomas Fuller (1650)
●●●

Buxton
Posts: 30
Joined: Fri Feb 28, 2014 4:34 am

Re: PSA monitoring

Postby Buxton » Mon Feb 28, 2022 11:24 pm

JJH wrote:
Buxton wrote:...PSA (prostate) up slightly to .99. Nobody seems bothered but Dr wants 6 monthly tests...

John,

It's good that your doctor wants 6 monthly PSA tests. This is what is needed in order to properly monitor for out-of-range and accelerating PSA levels over time.

These sequential PSA tests need to be done in the same lab with the same equipment and with the same assays, otherwise the results will not be comparable. And, of course, you need to know what the PSA normal-range limits are for your particular lab.

More information on PSA monitoring and prostate treatment can be found near the bottom of the following post:

https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=63819&p=510779#p510779

Thank you. The pc is ct2a and I had rt. I didn’t have hormone treatment, in fact I have monthly testosterone injections to keep at a normal level as I have hypogonadism. I am with some pc sites.

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beach sunrise
Posts: 1034
Joined: Thu Mar 05, 2020 7:14 pm

Re: Six years today!

Postby beach sunrise » Mon Feb 28, 2022 11:28 pm

Hi Buxton, one of my doctors has had prostate cancer for about 7 years now. He takes high dose vitamin C for it.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

Buxton
Posts: 30
Joined: Fri Feb 28, 2014 4:34 am

Re: Six years today!

Postby Buxton » Tue Mar 01, 2022 3:10 am

beach sunrise wrote:Hi Buxton, one of my doctors has had prostate cancer for about 7 years now. He takes high dose vitamin C for it.

I’ll have a chat with him next week. I usually see him every six months for a review and I take a list of questions. Bowel movements will always be variable after my cancer surgery, I get constipated and at times the opposite. I sometimes am desperate to pee but can’t produce anything, My right ear is always blocked unless I pop it and then it blocks again. Any so on. I sometimes feel sorry for him.


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