Booklet: ''Younger People with Bowel Cancer"

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O Stoma Mia
Posts: 1603
Joined: Sat Jun 22, 2013 6:29 am

Booklet: ''Younger People with Bowel Cancer"

Postby O Stoma Mia » Fri Mar 22, 2019 3:12 am

    Booklet: ''Younger People with Bowel Cancer"
    https://bowelcancerorguk.s3.amazonaws.com/Publications/Young%20persons%20guide%20to%20bowel%20cancer.pdf

    "Bowel cancer usually affects older people, so it can be hard to find information and support that meets your needs. This booklet gives an introduction to how bowel cancer can affect your body, emotions, relationships and daily life. We’ve included some personal experiences of younger people diagnosed with bowel cancer. At the end of each section, we tell you where you can find more information. Contact details for all the organisations mentioned are listed at the end of this booklet. There’s also a list of the medical words used with their meanings"

      Contents
      • 4 About this booklet
      • 5 Never Too Young
      • 6 Know your healthcare teamYour diagnosis
      • 9 What is bowel cancer?
      • 10 Diagnosis
      • 12 Your feelings
      • 14 Telling people
      • 15 You and your partner
      • 15 Coping on your own
      • 16 Talking to children
      • 17 Telling a parent
      • 19 Getting support
      • 20 Genetic risk
      • 20 Lynch syndrome
      • 22 FAP
      • 22 MAP
      • 22 Genetic testing
      • 24 Fertility
      • 24 Fertility in women
      • 26 Fertility in men
      • 27 Questions to ask after your diagnosisYour treatment
      • 29 Your treatment options
      • 29 Surgery
      • 30 Stomas
      • 31 Staging and grading
      • 31 Radiotherapy
      • 32 Chemotherapy
      • 32 If your cancer has spread
      • 33 Biological therapies
      • 33 Clinical trials
      • 35 Coping with side effects
      • 36 Complementary therapies
      • 37 Questions to ask about your treatment optionsAfter treatment
      • 39 Worries about the future
      • 40 Follow-up
      • 41 Side effects
      • 42 Tiredness
      • 42 Hernia
      • 43 Nerve damage
      • 44 Bowel function
      • 45 Bladder function
      • 46 Sexual function
      • 48 Body image
      • 49 Physical activity
      • 51 Questions to ask at your follow-up appointments
      • 53 Work and legal rights
      • 54 Money and insurance
      • 54 Childcare
      • 55 Travel
      • 56 Medical words used in this booklet
      • 59 Other useful organisations
      • 63 Further support

Pyro
Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Booklet: ''Younger People with Bowel Cancer"

Postby Pyro » Fri Mar 22, 2019 7:10 am

Really good except nothing about the “other” outcome, surpirises me and makes this incomplete.
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!


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