O Stoma Mia wrote:Here is a draft of your signature, showing the data known to date. Some items are missing and need to be specified later, when known.
Eventually you should create a proper signature in your profile so that other members here can see your mother's situation at a glance:
How to create a signature
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52681&p=421597#p421597Caregiver to Mom/ F, 47 years old
DX: Rectal Cancer (RC) ,
Tumor Location: 4 cm from AV
Tumor type: Adenocarcinoma with signet ring-cell features.
Tumor size: approx 6 cm
Tumor grade: G3: Poorly differentiated (high grade)
TNM code: TxN1aM0 (tentative staging)
Stage: Stage IIIA (tentative)
Positive lymph nodes: Tentatively: 1 (one) - (inferred by CT, and PET/CT, not by biopsy)
Mets: None observed on CT or PET/CT
Baseline CEA value: 1.4 ng/ml
Lymphovascular invasion (LVI) - absent
Perineural invasion (PNI) - present
Surgical margins: N/A (margins cannot be determined until after primary surgery)
MSI status (if known) – Important!! Adjuvant therapy cannot be determined without this finding.
Primary surgery type: Most probably ULAR, Either laparascopic or open resection (To be decided later)
Ostomy surgery: Ileostomy most likely. Decision at time of primary surgery
Radiation therapy: Chemo/radiation – 6 weeks (completed on March 21, 2019)
Adjuvant Chemotherapy: e.g., XELOX, CAPEOX, FOLFOX, etc., to be determined later
friendship wrote:....If anyone has any suggestions for dos/donts during the wait period, I would really appreciate it. -friendship
rp1954 wrote:...Pre- or peri-operative cimetidine is one of the most fundamental advanced CRC treatment opportunities most never got that changes survival and can be done up to, through, and immediately after surgery. It is really one of the first steps that needs to be addressed....
Rock_Robster wrote:I guess coping with the wait periods is a personal thing, but a few things I’ve found that helped:
- As hard as the radiation has been on your mum, chances are it’s been waaay harder on the tumour! In fact one reason for the wait period is that much of the tumour shrinkage happens in the weeks *after* radiation, not during. So chances are during this 4-6 week period, things are still moving in the right direction. Some of the results around response and down-staging of tumours from long-course radiation are truly impressive, and should give you some confidence here.
- I try to use these periods to try to ‘forget’ about cancer stuff, and rebuild my strength for the next phase of treatment. Easier said than done I realise! For me this means staying off Google, forums and social media for a bit, doing some daily exercise/activity, and eating like my life depends on it (things I find harder to do during treatment).
- Having a few planned fun activities can be nice, even if it’s just one thing each week. Something to look forward to rather than just counting the days to the next scan, and keep some semblance of “normalcy”.
Well done to you both for handling the radiation, and best wishes for the scans and next steps!
O Stoma Mia wrote:friendship wrote:....If anyone has any suggestions for dos/donts during the wait period, I would really appreciate it. -friendship
There are some pre-surgery suggestions that member rp1954 has made in the past. You might want to look into some of his posts, particularly the ones on cimetidine, and ask your doctor about this approach.rp1954 wrote:...Pre- or peri-operative cimetidine is one of the most fundamental advanced CRC treatment opportunities most never got that changes survival and can be done up to, through, and immediately after surgery. It is really one of the first steps that needs to be addressed....
_Jelen90 wrote:It's my husbands last day of chemoradiation today as well. The last two weeks were pretty rough for him..he has BAD burns from radiation and is waking up 2-3 times a night in a lot of pain. I think it's pretty standard that your mom has to wait a few weeks to get her scans done. Here we are booked in 8 weeks for CT/MRI and his surgery will be most likely 2 weeks after that.