Thank you all for suggestions!! Here's an updated version. I made 4 groups to organize them a little bit but please add/correct! I'm bolding
parts I could use some help with.A. The shock
1. Stats are old, like, seriously old AND invalid. They include people who died of other things and were drawn from a period when targeted drugs and immunotherapy weren't available. Not only you’re not a number, but also your chances today are MUCH HIGHER.
2. There are curative possibilities even for Stage IV. Check the forum to see many survivors! (links to topics?)B. Initial steps
1. Get a board certified colorectal surgeon.
2. If possible, go to a major cancer center. If not, please at least get a second opinion at a major cancer center. Make sure to find an oncologist who is aligned to your approach and wants to cure you. Many here have tried more than 3 doctors before they found “the one”—the one that wants to cure you!
3. Info on staging: (links?)
4. Ask your oncologist whether you should try to gain weight. Calculating your BMI might also help: https://www.verywellfit.com/bmi-what-is ... ex-3120088
5. Consider finding a therapist, this is a difficult process and get all the help&support you can get!C. Treatment
1. Get your CEA, CA199 checked before
primary tumor surgery. This will help a lot to see the course of your treatment. additions?
2. Get your tumor tested, learn your mutations (KRAS, BRAF, NRAS and MSS/MSI etc.)
3. LARS is a thing, ask your doctor about it. If your tumor is very low, ask about the possibility of “Watch and Wait.”
4. Standard chemo protocols: (link)
5. Managing metastases: you have lots of options! —I remember seeing a post where someone listed all the possibilities, would appreciate if someone would link it!—
Liver: HAI, RFA, …. we could link these too?
Brain: ……..D. Additional/Misc.
1. If your chemo regimen includes Vectibix or Erbitux, ask to start treating the rash that 90% will get prophylactically. Once it's there it is difficult to treat, and medical papers suggest best approach is to treat two weeks prior to usage!
2. Reading suggestions: Radical Remission, …..