Hi all!
I'm fairly new to this forum but have been doing a lot of reading. After recovering from liver resection and sbrt, the plan is to do mop-up chemo - 6 more rounds. I was on folfiri + avastin with very few side effects but onc was not happy with the fact that 6 rounds did not impact my liver mets. I have been able to avoid oxaliplatin since my first round of chemo (xeloda) in March 2018 but that is no longer going to fly. I had polio as a baby and have lived with the challenges of mobility impairment since then. Since polio is a neuro-musculature disease we thought it best to avoid the drug that would cause more problems. I'm also a musician - flutist - and didn't want to impact that. But of course, now it's all about staying alive so I'm gonna do what it takes!
So here's what I'm trying to find out. I've read early on about different thing that help mitigate the neurological side effects of folfox, but since that wasn't what I was on I basically read and forgot. Now I want to know! Is there somewhere on the forum where someone has fleshed out all the different things that help? I'm not worried about the gastric issues - my wife says I have an iron gut. I never had gastric issues with irinotecan. I'm most concerned about neuropathy as well as the cold sensitivity.
I'm treated at UTSW and they have been great to this point with how chemo is administered (with the additional infusions for nausea, etc). I also wondered if the administration of folfox is different than folfiri.
Any helps with this would be greatly appreciated!
Lino