Brearmstrong, Dr. Bartlett did not use the word cure, but he said with surgery, " it could go away and never come back or it could come back again." So I guess that's the best we could hope for anyhow. My husband's oncologist said if his scans are clean after he completes chemo he would be done with chemo. But I guess that could change too. Is there any specific reason your doctor keeps you on maintenance chemo?
Brearmstrong wrote:I am told that there is a very high rate of recurrence once in distant lymph nodes and while my surgeon did a great clean up and had clean margins, I am also not a candidate for immunotherapy because of my MSS status. I will stay on xeloda for at least a year and indefinitely if I can continue to tolerate it. If it comes back a third time, I'm out of chemo options ;-(
of switching to Xeloda as I want to keep this going as long as possible. If they come back and it is in a limited fashion I'm going to push for surgery.I had para-aortic nodes at diagnosis and as of my last PET scan in April they are no longer showing up (I'm overdue for a scan now). 5Fu infusions are starting to wear me down so I'm thinking
Brearmstrong wrote:Gringo, why did MSK say surgery is off the table? Location?
gringo51 wrote:... Dr. has taken surgery off of the table. Should we be seeking another opinion still? They want to wait for next scan in Oct to confirm second 2 nodes.
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