Page 1 of 1

Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Posted: Thu Jul 19, 2018 6:49 pm
by StupidAssCancer
Has anyone received a Chronic Lukemia diagnoses post colorectal cancer? I just went in for my annual and my dr is putting me through a host of testing as she thinks I have Chronic Luekemia. I know nothing about this but am curious if there is a link between colorectal Cancer and this lukemia? Also is it a metastasis or its own Cancer? And lastly what have you done to treat it if you also have been given this diagnoses? My original colorectal diagnoses was 5 years ago
Thank you much for your answers.

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Posted: Thu Jul 19, 2018 10:27 pm
by CRguy
Hey homie
sorry you are faced with more challenges ... BUTT ... the fact that your docs are upping their game
and pushing for more info = GOOD !

Get all the info
plan your work
then
WORK YOUR PLAN

WORD !

Harmony
CRguy on the journey

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Posted: Thu Jul 19, 2018 10:35 pm
by StupidAssCancer
Thank you, yes totally will make my plan. I was just curious if we are seeing this as a result of treaatment it Therapy to our original Cancer/chemo.
Thank you got your words of encouragement :D

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Posted: Thu Jul 19, 2018 11:39 pm
by CRguy
I cannot recall specifically if anyone here had a confirmed leukemia Dx post CRC treatment.
I had persistently low lymphocytes for about 2 years + after chemoradiation with no other CBC abnormalities and that all slowly got back to "normal"

An actual Dx of say, CLL could have a number of causes, some of which may include prior cancers and chemo / radiation etc.
BUTT ... AFAIK I know of no direct causality / link specifically to what we get as CRC'ers

Getting all the testing done to get the info is what is needed, 'cos sometimes the changes in lab results are NOT actual diseases
like we have gone through.
If not ... that is GOOD
If so .. than as I said, better your docs are ahead of it by getting the tests done = GOOD docs !

Keep us in the loop sista'
we are here for you !!!

Cheers
CRguy

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Posted: Fri Jul 20, 2018 12:33 am
by rp1954
Chemotherapy and radiotherapy have some cumulative risk for dysplasia and leukemia. Chemo for CRC is not considered especially problematic although there is a tendency to not much acknowledge common treatment dysplasias either. Other problems have historically been considered more critical.

A Colon Club forum member who has discussed CML is Traci43, at CSN these days. It is a problem to distinguish de novo chronic leukemia from treatment related chronic leukemia and it has pretty low coverage in the literature. With acute leukemia drs do routinely distinguish between treatment related and de novo acute leukemia.

In the medical literature there are long term upper MCV values that associate with later risk of treatment related leukemia, particularly some drugs for other cancers. MCV is a consideration in chemo intensity for us, upper (leukemia risk) and lower (to be active enough against cancer). In my wife's immunochemo regimen, things that are described to ameliorate some dysplasias and leukemia cells include natural folate sources, PSK (a special hot water Coriolus mushroom extract), the human form of vitamin K2 (menatetrenone aka menaquinone-4), and IV vitamin C.

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Posted: Fri Jul 20, 2018 9:04 am
by StupidAssCancer
Thank you so very much for taking the time to delve into this with me. I had found some literature but not much on it so hearing personal case stories is always where I find my greatest education through my progress with this cancer etc.
The tips you shared are priceless. Thank you! I will have a certain diagnoses on Thursday and I’m sure will be back with more questions at that point.
My very best to you and your wife,
Alys

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Posted: Sat Jul 21, 2018 10:57 am
by DarknessEmbraced
I'm sorry you're going through this and hope you won't have to wait long for answers!*hugs*

Re: Has anyone received a Chronic Lukemia diagnoses post colorectal cancer?

Posted: Sun Jul 22, 2018 7:33 pm
by StupidAssCancer
Thank you.... I’m very anxious to get some answers.