8 years later

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Mattie
Posts: 76
Joined: Fri Mar 07, 2014 1:06 am

8 years later

Postby Mattie » Thu May 24, 2018 11:32 pm

Hi Colon Club.

Just dropping in to let everyone know my scan results came in. Still NED. Continuing avastin only. Peace to all.
4/10 debulk surgery, DX stage IVb, 49yo
5/10-11/11 Folfox, then Xeloda/Avastin
4/13 Resect liver met + pelvic node, 20+ Rad treatments
7/14 SBRT 15 mm Liver & node
12/14 SBRT 8 mm Liver met
3/16 4-5 pelvic nodes, Xeloda/Avastin again
12/16 NED, maintaining Xeloda/Avastin
8/17 NED Dropping Xeloda. Avastin only.
3/21 NED Avastin only
10/21 Pausing Avastin Proteinuria/BP complications
12/21 Resect 4.4 x 3.6 cm lower abdominal met

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: 8 years later

Postby stu » Fri May 25, 2018 2:33 am

Hi ,
That’s fantastic news . Long may it continue ,
Much love,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: 8 years later

Postby LPL » Fri May 25, 2018 3:30 am

Thank You !! for dropping in and sharing your good news.
Wonderful - Big Congratulations :D
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

NedPlease
Posts: 550
Joined: Fri Mar 23, 2012 3:56 pm

Re: 8 years later

Postby NedPlease » Fri May 25, 2018 7:00 am

Great news and loving the company.
Eight years for me too!

Continued good health,
N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: 8 years later

Postby mpbser » Sat May 26, 2018 6:34 am

Awesome to hear!
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

User avatar
CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: 8 years later

Postby CRguy » Sun May 27, 2018 11:36 pm

Great news homie

keep kickin' it harsh ole skule !!!! :mrgreen:

Cheers and Harmony on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

SteveNZ
Posts: 147
Joined: Tue Apr 24, 2018 4:21 pm
Location: New Zealnd

Re: 8 years later

Postby SteveNZ » Mon May 28, 2018 3:05 am

So glad to hear this.
I have just started my '..nasty adventure..' (I have a T2 bowel cancer which is pretty feeble compared to what others go through) and it is so great to hear news like yours. :D :D
Aged 56 - I feel really young...
Colo-Rectal Cancer T2 N1 M0
March 2018 - Diagnosis
April-May 2018 Radiation+Chemo then a TIA (Minor Stroke). - Stopped Chemo.
August 27th-November 2018 - Surgery and long, long recovery
*Decided to live to 100 as I will get a telegram from Her Majesty the Queen when 100yrs old. I so, so want one.
Am a Salvation Army chap so I complete 'knee drill' (prayer) to the Commander in Chief often. For myself personally this helps me through.

WarriorSpouse
Posts: 220
Joined: Tue Aug 16, 2016 9:02 pm

Re: 8 years later

Postby WarriorSpouse » Mon May 28, 2018 8:53 am

Great news! Thank you for your post.

If you do not mind me asking, what Cancer Center has prescribed you to be on maintenance Avastin only? I know this is a new direction and clearly it has positive results for those that Avastin works well. My wife's Oncologist is from Dana Farber and it has been suggested as a future consideration. At what point did you decide not to include Zeloda in your treatments with Avastin?

Thank you in advance for sharing if you feel comfortable responding to my questions.

Always happy to see a patient winning the days, months, and years.
I am very much looking forward to seeing you here every year with a similar message:)
WS
D/H 47 years old, 10/2014, Stage IV M/CRC, nodes 12/15, para-aortic, 5 cm sigmoid resection, positive Virchow. KRAS mut, MSS, Highly Differentiated, Lynch Neg, 5FU/LV and Avastin 1 YR (Oxi for 5 months), Zeloda/Bev since 01/2016. 02/2019 recurrence para-nodes, back to 5FU/LV Oxy/Bev. It is working again. "...Perseverance is not a long race; it is many short races one after the other."-Walter Elliot

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 8 years later

Postby DarknessEmbraced » Mon May 28, 2018 1:04 pm

Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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