Scan scheduled

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DarknessEmbraced
Posts: 3525
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scan scheduled

Postby DarknessEmbraced » Thu May 24, 2018 8:30 am

I'm glad you had good scan results and hope the liver spot is benign!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

heiders33
Posts: 362
Joined: Sat Nov 04, 2017 11:08 am

Re: Scan scheduled

Postby heiders33 » Thu May 24, 2018 1:54 pm

Thank you! I finally got a call from the medical imaging place and scheduled the MRI for June 4. My oncologist is quick so I should know results on June 5. I’m nervous as heck but I know all I can do is wait.
37 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU
7/19 - Clear CT
9/19 - Clear colonoscopy/colonography
10/19 - Clear CT
11/19 - CEA 9.8, PET abnormal, confirmed local recurrence

Daniellabella
Posts: 41
Joined: Wed May 23, 2018 10:32 pm

Re: Scan scheduled

Postby Daniellabella » Thu May 24, 2018 4:43 pm

Does anyone know if staging can be done with just biopsies and pictures from a sigmoidoscopy?

Does a CT or MRI also need to be done?

I ask bc my husband was diagnosed yesterday and the surgeon appointment will be Tuesday, yet there’s been no CT/MRI.

heiders33
Posts: 362
Joined: Sat Nov 04, 2017 11:08 am

Re: Scan scheduled

Postby heiders33 » Thu May 24, 2018 8:02 pm

When I was first diagnosed, I had a CT scan to determine if there was any spread, and then I had an endoscopic ultrasound to determine staging according to the TNM rubric. I also had a PET scan. I would think your husband would need a scan, but hopefully someone more knowledgeable about sigmoidoscopies will be able to help you.
37 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU
7/19 - Clear CT
9/19 - Clear colonoscopy/colonography
10/19 - Clear CT
11/19 - CEA 9.8, PET abnormal, confirmed local recurrence

NHMike
Posts: 2506
Joined: Fri Jul 21, 2017 3:43 am

Re: Scan scheduled

Postby NHMike » Thu May 24, 2018 9:14 pm

Daniellabella wrote:Does anyone know if staging can be done with just biopsies and pictures from a sigmoidoscopy?

Does a CT or MRI also need to be done?

I ask bc my husband was diagnosed yesterday and the surgeon appointment will be Tuesday, yet there’s been no CT/MRI.


My staging was done from MRI - the surgeon requested it in both cases.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
O Stoma Mia
Posts: 1602
Joined: Sat Jun 22, 2013 6:29 am

Re: Scan scheduled

Postby O Stoma Mia » Thu May 24, 2018 11:53 pm

heiders33 wrote:...May 2018: CT scan showed liver spot, MRI scheduled ...

heiders33 wrote:...I finally got a call from the medical imaging place and scheduled the MRI for June 4...


Magnetic resonance imaging (MRI) - Northwell Health
https://www.northwell.edu/find-care/services-we-offer/imaging/treatments/magnetic-resonance-imaging-mri

Abdominal MRI scan
http://www.healthcommunities.com/xrays-scans/abdominal-mri-scan.shtml

Magnetic Resonance Imaging (MRI) - Body
https://www.radiologyinfo.org/en/info.cfm?pg=bodymr

Eleda
Posts: 328
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Scan scheduled

Postby Eleda » Fri May 25, 2018 2:57 am

My surgeon will not say the stage untill the tumor is completely removed, but obviously I'm stage 3. Because of lymph invasion but they just say no any time I ask,,,,
I'm pat and hispatology results next Friday so will deffo know then, even still I will only b verbally informed,, they never let us see our file or give us a copy of the reports, so it really at their mercy for information
Adele X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

NHMike
Posts: 2506
Joined: Fri Jul 21, 2017 3:43 am

Re: Scan scheduled

Postby NHMike » Fri May 25, 2018 8:04 am

Eleda wrote:My surgeon will not say the stage untill the tumor is completely removed, but obviously I'm stage 3. Because of lymph invasion but they just say no any time I ask,,,,
I'm pat and hispatology results next Friday so will deffo know then, even still I will only b verbally informed,, they never let us see our file or give us a copy of the reports, so it really at their mercy for information
Adele X


I had two MRIs, requested by the Surgeon, before chemo/radiation and after chemo/radiation. The pathology report in both cases was exhaustive and it was pretty clear to me what my stage was before chemo. My understanding is that your original staging stays with you. The post-surgical pathology report couldn't determine if there was lymph node involvement as they weren't cancerous afterwards but this could have been done by the chemo or the radiation.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Eleda
Posts: 328
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: Scan scheduled

Postby Eleda » Fri May 25, 2018 12:02 pm

Yes Mike I get that and that's why I and most people will have to do mop up chemo afterwards because the surgeon said that we will actually prob never know whether the lymps were swollen ie (" doing their job' ) or actually cancerous because the radiation and chemo may have killed them already
Adele x
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

Basil
Posts: 270
Joined: Thu Mar 16, 2017 12:33 pm

Re: Scan scheduled

Postby Basil » Sun May 27, 2018 7:44 pm

I logged in after a break because my one year scans are coming up in a couple of weeks. Starting to get that scanxiety. Hope the MRI confirms what you docs believe!
40 y/o male, kids 8&11
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear
2 year scans - clear

User avatar
henry123
Posts: 214
Joined: Sun Oct 08, 2017 3:25 am

Re: Scan scheduled

Postby henry123 » Wed May 30, 2018 5:03 pm

Hi
Six monthly scans coming up next week.
A bit anxious but optimistic that all should be ok.
Family is more jittery and asking how I am feeling .
Fingers crossed.
46yo M msi-high Lynch +ve
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
4/18 2
Aspirin start
6/18 1.5 CT clear
12/18 1.1 NED
6/19 .9 CT clear
1/20 NED Opdivo stop

Beckster
Posts: 422
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Scan scheduled

Postby Beckster » Wed May 30, 2018 5:16 pm

Just to add one more... I have my 6 month scan scheduled in 2 weeks! Starting to get anxious. I get my blood work done the day before, so I will have my results before knowing the results from the scan. CEA levels make me more anxious than the scans! I keep counting down my scans .... starting year 2, which means 6 more scans to reach my 5 years. Keeping my fingers and toes crossed :!:
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18, 6/19, 12/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0
Clear Colonoscopy 10/17, 11/19 :D

User avatar
susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Scan scheduled

Postby susie0915 » Wed May 30, 2018 6:16 pm

My six month checks were good this month. CEA still less than .5 and scan showed now evidence of disease. 4mm lung nodule still there no change in a year. Scar tissue and inflammation doctors think is due to possible auto immune disorder unchanged. So now upcoming appointments with pulmonologist monitoring inflammation/scar tissue as well as rheumatologist monitoring the possibility of auto immune disorder. Good luck to all in their upcoming scans.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

heiders33
Posts: 362
Joined: Sat Nov 04, 2017 11:08 am

Re: Scan scheduled

Postby heiders33 » Thu May 31, 2018 9:24 pm

I keep getting this feeling in my midsection as if my intestine is twisting or pulling. Has anyone else experienced this? It’s not pain, just a weird sensation. I’ve assumed that it’s just residual from my ileostomy reversal surgery, but of course now that I have this MRI coming up I’m paranoid that it could be something worse. My sister said after she had her baby she had similar feelings of being all twisted up inside.
37 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU
7/19 - Clear CT
9/19 - Clear colonoscopy/colonography
10/19 - Clear CT
11/19 - CEA 9.8, PET abnormal, confirmed local recurrence

User avatar
O Stoma Mia
Posts: 1602
Joined: Sat Jun 22, 2013 6:29 am

Re: Scan scheduled

Postby O Stoma Mia » Fri Jun 01, 2018 3:09 am

heiders33 wrote:Thank you! I finally got a call from the medical imaging place and scheduled the MRI for June 4. My oncologist is quick so I should know results on June 5. I’m nervous as heck but I know all I can do is wait.

I was wondering if you have ever had an MRI before. If you haven't, there are several things that should be noted in advance so that you do not unintentionally mess up or blur the scan. I'm posting this because you have posted several messages saying that you are anxious or very nervous,

The MRI procedure is different from the CT scan procedure in several ways. The most important differences to keep in mind are:

1. The scan takes a lot longer than a CT scan.
2. You have to remain motionless each time you go through the MRI tunnel. You cannot stop to scratch your nose and you cannot shift your body around if your calves or buttocks start to go to sleep. You have to follow the instructions when they say "Hold your breath" and later, "Breathe normally now"
3. You cannot have any metallic items on you. No jewelry, no rings, no watches, etc. Perhaps no eyeglasses. No clothes with metal snaps or metal eyelets. No credit cards in your pocket. No parking-lot tickets with metal strips on the back. Anything metallic that can be magnetized will likely cause a problem and blur the image. This includes some kinds of tattoos that have a metallic base. It might even include some kinds of fingernail polish that have a metallic base (I'm not sure about this, though).

Here is information that I have already included in an earlier post, but I am including it again here because it is very important since there are a couple of items pertaining to the dangers of anxiety provoking fidgeting during the exam. I hope you don't mind the repetition.

The main purpose of this MRI is to get a clearer image of the liver spot than the image provided by the earlier CT scan. You need to do whatever you can to insure that this image is not contaminated or blurred.

What are the limitations of MRI of the Body?

High-quality images are assured only if you are able to remain perfectly still and follow breath-holding instructions while the images are being recorded. If you are anxious, confused or in severe pain, you may find it difficult to lie still during imaging.

. . .

The presence of an implant or other metallic object sometimes makes it difficult to obtain clear images due to streak artifacts from the metallic objects. Patient movement can have the same effect.

. . .

Breathing may cause artifacts, or image distortions, during MRIs of the chest, abdomen and pelvis. Bowel motion is another source of motion artifacts in abdomen and pelvic MRI studies. This is less of a problem with state-of-the art scanners and techniques.

. . .

MRI typically costs more and may take more time to perform than other imaging modalities.

Reference: https://www.radiologyinfo.org/en/info.cfm?pg=bodymr


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