My mom has passed away on Wednesday. Thank you all for this wonderful support forum

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BUD2016
Posts: 55
Joined: Sat Sep 10, 2016 3:25 pm

My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby BUD2016 » Fri Dec 01, 2017 11:46 am

Dear all,

My mom has passed away on November 29th. It was a very rapid decline.

Since her diagnosis in August 2016 I have read the threads on this forum (even dated several years back) almost daily. The wealth of information and support here people give to each other has been life saving for me and my family. Here I found information which helped us to navigate through this journey and stay sane at times, since just knowledge peopled shared here has been invaluable. And of course the emotional side of the journey of a caregiver, which I was twice now to both of my parents.

I have not posted much on this forum, but would like to remain the member of this wonderful international group and help others as much as I can.

Thank you all.

On behalf of my mother Valentina
Budapest, Hungary
09/2016: Mom dx/rectal cancer
10/2016: Open surgery. T3N0/Grade 2
11/2016: PET/CT scan shows 5 liver mets in both lobes
11/2016: FOLFOX + Avastin started on her 71st birthday
KRAS gen 2 G13D mutant, BRAF Negative, MSS
03/2017: Oxi stopped after 9th tx, 5FU cntd. CT scans w/ contrast every 2 months - small shrinkage/stable
05/2017: PET/CT progression, started FOLFIRI + AVASTIN
07/2017: MRIs/CT stable
09/2017: MRIs/CT - min progression
09/2017: FOLFIRI + CYRAMZA
11/2017: left us

sdino
Posts: 54
Joined: Tue Mar 28, 2017 5:32 pm

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby sdino » Fri Dec 01, 2017 12:25 pm

Peace to you and your Family.
Caregiver for Wife 52 yrs old
DX:11/16-CC sigmoid colon
Lung Mets: Bilateral ranging 4mm-1.5cm
MSS, KRAS-mut G12D; TP53;
Completed 12 rounds Folfox/Avastin + Oxi 11/16 to 5/17, 8/17 Start Xeloda + Avastin
CT Scans: 5/17 colon & lung met shrinkage,11/17 and 1/18 slight progression lungs/colon
NCI YOUNGER TIL Trial NCT03412877 - 1/18 VATs lung surgery 2 mets wedge resect
CEA: 16 - 11/16; 0.6 - 5/17; 3.0 - 11/17; 4.4 - 1/18; 5.7 - 2/18; 4.9 - 3/18

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Robino1
Posts: 433
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby Robino1 » Fri Dec 01, 2017 12:47 pm

I am so sorry for your loss. {{{{ Hugs to you and your family }}}}
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5
BRAF V600e

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby SweetC80 » Fri Dec 01, 2017 12:50 pm

I'm so sorry for your loss. I wish your mother peace.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

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susie0915
Posts: 759
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby susie0915 » Fri Dec 01, 2017 3:11 pm

So sorry for your loss. Praying for your family.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

Ampes
Posts: 13
Joined: Wed Sep 20, 2017 6:14 am

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby Ampes » Fri Dec 01, 2017 4:00 pm

So sorry for your loss!!!
DH diagnosed 9/17 57 yrs
CRC ascending 7x3 cm tumor
T3N0M0 stage 2A well differentiated MSS
LAR right hemicolectomy 10/11/17 clear margins

Cyn
Posts: 5
Joined: Thu Nov 30, 2017 12:19 am

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby Cyn » Fri Dec 01, 2017 10:27 pm

Aw, man ... I am so sorry :(

mozart13
Posts: 133
Joined: Fri Dec 09, 2016 7:38 pm
Location: Toronto

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby mozart13 » Fri Dec 01, 2017 11:18 pm

So sorry for your loss.
55 year at the time of diagnosis, male
Diagnosed with T1,T2 N0 M0 rectal cancer
Total neoadjuvant therapy or TNT (chemoradiation followed by systemic chemotherapy)
Negative since Feb. '17
No surgery
Watch&Wait approach 8)
I don’t come much to forum , so if this is not updated it means I remain negative!
Wish good luck to all!

AussieAssCancer
Posts: 246
Joined: Sat May 21, 2016 10:16 am

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby AussieAssCancer » Sat Dec 02, 2017 4:47 am

So very sorry to hear, mate!
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

tammylayne
Posts: 2174
Joined: Fri Jul 16, 2010 9:24 am

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby tammylayne » Sat Dec 02, 2017 12:35 pm

So sorry for your loss.
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

DarknessEmbraced
Posts: 2990
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby DarknessEmbraced » Sat Dec 02, 2017 12:42 pm

I'm so very sorry for the loss of your mother!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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ocstacy
Posts: 236
Joined: Mon Jun 19, 2017 11:29 pm
Facebook Username: stacy

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby ocstacy » Mon Dec 04, 2017 4:09 am

Thinking of you and your family. Hugs <3
Caregiver/daughter to dear mother age 78, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low-grade adenocarcinoma- 6 cm
Neoadjuvant start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 back @ hospital due 2 abscess/hernia - back home 11/06/17 antibiotics
NO LYMPHS INVOLVED! NEAR PATHOLOGICAL RESPONSE! YAY! :shock:
Took her last chemo med 05/10/18! Reversal 07/2018?
Me: Colonoscopy age 38. 08/17 Benign polp. internal hemmy's post partum

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby jhocno197 » Tue Dec 05, 2017 9:06 am

I am so sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

fumaros
Posts: 231
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby fumaros » Tue Dec 05, 2017 9:27 am

Really sorry for your loss. Stay strong.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

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LeonW
Posts: 335
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

Postby LeonW » Tue Dec 05, 2017 10:14 am

Sorry to hear.
Condolances,
Leon
Dec 2012 - Colon Cancer MM 65yrs, 2 unresectable liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen 2/26 nodes (IVa T3N1bM1a) MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, delirium, emboli, encephalopathy) pCR- all cancer gone
2014/15 - recovery; benign polyp
Apr 2016 - new town, new life
clean CTs and low (1.3/1.4) CEAs: 4x2014, 6x2015-17
next June 2018 w scopy
5yr mark in sight


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