Robino1 wrote:I don't have an answer for you but I did want to congratulate you on the impressive drop in your CEA numbers!! Sounds like Opdivo is working REALLY well for you!
Thanks, Robino. Pray that things work out for everyone.
Robino1 wrote:I don't have an answer for you but I did want to congratulate you on the impressive drop in your CEA numbers!! Sounds like Opdivo is working REALLY well for you!
henry123 wrote:Does any one have experience or knowledge with regards to immunotherapy (keytruda/opdiva) , what is protocol (if any) if there is complete regression of tumors.
For how long is it continued once ct /cea are normal.
Is there any maintenance dose ?
thanks .
Steph20021 wrote:Hey Henry, I suspect you are at the head of the pack on this, a forerunner, and you will be sharing the answers you are looking for with US soon enough. So cool Opdivo is working for you. I’m MSS but applying to a combination trial with Opdivo in Toronto. I’m looking for info on how other MSS folks have experienced Opdivo combinations but not finding anything. Wishing you continued success
henry123 wrote:I am happy to hear that it worked out so well for you.
I just got back my CT scans after 6 months of Opdivo. They are mostly clear and only a lesion is there in lung. Earlier I had met spots in liver , lung and peritoneal region.
Cea levels are coming down too.
henry123 wrote:Hello friends,
Just got my CEA numbers in .
They are down to 3.6 .
Oncologist is satisfied with the progress.
NHMike wrote:henry123 wrote:Hello friends,
Just got my CEA numbers in .
They are down to 3.6 .
Oncologist is satisfied with the progress.
Given where you came from, I'd say that's an understatement.
henry123 wrote:Another article on duration of immunotherapy after good response
http://cancergrace.org/cancer-101/2016/ ... -duration/
plastikos wrote:henry123 wrote:Another article on duration of immunotherapy after good response
http://cancergrace.org/cancer-101/2016/ ... -duration/
Hi Henry. First of all congrats on your results on Opdivo. I have been on Keytruda for a year and I am doing well save for the toll it is taking financially. Where I live the drug is not covered by insurance nor are there any patients assistance programs. I have been looking for articles which would give me an idea of how long I should be on the drug. Thanks for sharing this.
henry123 wrote:plastikos wrote:henry123 wrote:Another article on duration of immunotherapy after good response
http://cancergrace.org/cancer-101/2016/ ... -duration/
Hi Henry. First of all congrats on your results on Opdivo. I have been on Keytruda for a year and I am doing well save for the toll it is taking financially. Where I live the drug is not covered by insurance nor are there any patients assistance programs. I have been looking for articles which would give me an idea of how long I should be on the drug. Thanks for sharing this.
Haha
I asked you same question on another thread.
One of the oncologists on team has suggested that they may increase the duration between infusions from present 2 weeks keeping dosage same.
But she does not want to stop it for now. She also said that it may be 3 4 years before exact protocol is finalised for opdivo and keytruda.
I am trying to study melanoma patients in whom these medicines started much earlier than msi CRC. It seems that 6 months to a year after CR/ ned status is a good time to stop the infusions besides increasing the duration between infusions.
For now it seems more of an issue to be finalised between patient and oncologist. Pharmaceutical companies seem to have no interest in studying when to stop giving these expensive drugs.
Besides the cost there is also the issue of developing autoimmune symptoms with unnecessary infusions.
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