24yo female, 5-6 precancerous polyps

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24yo female, 5-6 precancerous polyps

Postby KaelaOne » Tue Sep 12, 2017 11:57 pm

Hey everyone!

I was doing some googling and found this site, hoping someone can give me some info :)

I had a colonoscopy that revealed 6 polyps, 5 were removed and came back as precancerous. The 6th was left there because it was too small to remove?

Wondering if it would be worth getting tested for Lynch Syndrome? My gastro doctor doesn't seem to think so but my family has a lot of cancer history (no one diagnosed with Lynch).

Next colonoscopy is scheduled for a years time, is that risky seeing as he left a polyp in there?


Deb m
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Re: 24yo female, 5-6 precancerous polyps

Postby Deb m » Wed Sep 13, 2017 9:43 am

That's very young to be getting your first colonoscopy, and good that you did. Were you having some issues/symptoms that prompted you to get your first scope at 24. I would push for genetic testing. It's unusual for somebody so young to have a polyp, let alone six of them that are pre-cancerous. I think getting another scope in a years time is good, I wouldn't wait any longer for sure!

deb m

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Re: 24yo female, 5-6 precancerous polyps

Postby jhocno197 » Wed Sep 13, 2017 9:53 am

I might want one in six months.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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Re: 24yo female, 5-6 precancerous polyps

Postby SweetC80 » Wed Sep 13, 2017 10:10 am

My BIL has Lynch syndrome and he has yearly colonoscopies and each one reveals at least a couple polyps that they remove. Being so young I would push for the testing.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

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Re: 24yo female, 5-6 precancerous polyps

Postby veckon » Wed Sep 13, 2017 10:43 am

Definitely get a comprehensive set of germline genetic tests. Contact a genetic counselor at Memorial Sloan Kettering.
27 yo male
Metastatic rectal cancer diagnosed 12/16
Liver metastases and peritoneal carcinomatosis
Lynch syndrome, MSI-H
Failed liver resection 3/17
FOLFOX6 12/16 - 05/17
Keytruda 5/17 - present
@Memorial Sloan Kettering

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Re: 24yo female, 5-6 precancerous polyps

Postby DarknessEmbraced » Wed Sep 13, 2017 1:46 pm

I agree that you should get genetic testing. Good luck!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Re: 24yo female, 5-6 precancerous polyps

Postby Lee » Wed Sep 13, 2017 2:05 pm

KaelaOne wrote:
Next colonoscopy is scheduled for a years time, is that risky seeing as he left a polyp in there?


I too support getting the genetic testing. Why did the Dr leave a polyp in your body? Based on that alone, I too would want a follow up in 6 months.

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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Re: 24yo female, 5-6 precancerous polyps

Postby JJH » Wed Sep 13, 2017 2:29 pm

KaelaOne wrote:
Next colonoscopy is scheduled for a years time, is that risky seeing as he left a polyp in there?


I think that the issue of follow-up colonoscopy scheduling is a complicated one, since the decision depends on a number of factors,such as the histological type of polyps found, the shape of the polyps (tubular vs flat),their degree of dysplasia, the adequacy of the patient's prep, etc. The article below can give you an idea of the types of issues that need to be considered when determining the optimal testing interval.

"The darkest hour is just before the dawn" - Thomas Fuller (1650)

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Re: 24yo female, 5-6 precancerous polyps

Postby susie0915 » Wed Sep 13, 2017 3:53 pm

I would definitely do genetic counseling. I wasn't a candidate but did do color.com. For $250 they will test for a number of cancer markers. I spoke to the genetic counselor at the hospital that treated me, and she endorsed color. I had all results sent to her as well. It's very easy to do. I was told my insurance wouldn't pay for genetic testing since I did not have cancer in my family and was 55 yrs old when diagnosed. But I would think at 24 and history of precancerous polyps would qualify you for insurance coverage. I decided to do for my kids. Even though they will be having colonoscopies early because of me, there could be others and the doctor told me if you are positive for a marker insurance will pay for preemptive testing.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

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