NEW-Need some positivity here.

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teacher2017
Posts: 275
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Sun May 30, 2021 2:15 pm

You are too kind!!! You helped me! And I’m just glad there is a record of this “journey” (I hate that word). I’m not delusional ana I know that as a stage 4 survivor the floor could fall from under me. But it’s just so great to know that complete strangers can become friends in the darkest of times. Glad you are well and going on four years! So great! Keep doing what you are doing!
Keep in touch!
Lydia


DonutHead wrote:So good to hear from you! Congrats on the house and the eventual retirement, sounds like something I need to start thinking of myself :) Good news that you remain NED and that you are moving in the right direction and past your diagnosis. If you recall, we ended up on here at about the same time and scared as all hell. However, you did a lot to help bring me through those dark moments and fears, and I will be eternally grateful for everything you did to help keep me sane when I needed it most! Going on 4 years NED with my next round of scans in July *fingers crossed* Don't feel bad about not being on here often and getting on with it, that is what we are meant to do and life is worth living! Continue to take good care of yourself and stay in touch!
50 yo mom of 2 (15, 18)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/17-4/18
CEA -1.4 11/8/17
Colonoscopy- 5/18-CLEAR!
Cea -1.8 6/18
Cea -2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection-9/18
Cea -1.5/1.2
Port removal-9/19
Cea -1.2 10/19
Cea -1.1 02/2020
Cea - 1.2 5/20
Cea-1.1 9/20
Cea- 1.3 2/21
Cea.1.3 5/21

teacher2017
Posts: 275
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Sun Sep 19, 2021 7:23 pm

Hi there-
Just had a scan and results come in on Wed. But I had a signetera test and never heard the results. Cea is 1.4 and all bloodwork looks normal. I know that it could all mean nothing. This will be 3 yes cancer free if it is a clear scan.

How’s everyone doing???
Lydia
50 yo mom of 2 (15, 18)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/17-4/18
CEA -1.4 11/8/17
Colonoscopy- 5/18-CLEAR!
Cea -1.8 6/18
Cea -2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection-9/18
Cea -1.5/1.2
Port removal-9/19
Cea -1.2 10/19
Cea -1.1 02/2020
Cea - 1.2 5/20
Cea-1.1 9/20
Cea- 1.3 2/21
Cea.1.3 5/21

Caat55
Posts: 692
Joined: Sat Dec 23, 2017 6:01 pm

Re: NEW-Need some positivity here.

Postby Caat55 » Sun Sep 19, 2021 8:12 pm

That’s good news! Two clean colposcopies, three CT. Moving forward and trying not to look in the rear view mirror too often.
Take care.
Susan
Do at 55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19, 5/20

DonutHead
Posts: 68
Joined: Tue Oct 03, 2017 6:45 pm
Facebook Username: mark

Re: NEW-Need some positivity here.

Postby DonutHead » Sun Sep 19, 2021 8:40 pm

All great news! Think you will be fine. 3 years clean after everything you have been through is amazing. Just keep your head up and know you will make it through this round as well. All will be good, think positive! I just had my latest rounds of scans and tests, everything was clean. I really do believe the surgeon taking out all of the lymph nodes around the site, 25 in total, is what did it. While the chemo kicked my butt and the doctor called it "optional" (but something he would do if faced with the same circumstances), glad I toughed it out and made it through. 4 years pushing to 5......

Hope all is going well in retirement!
Male 49 yrs.
09/2017: Colonoscopy 2.2x2 cm lesion - Invasive Adenocarcinoma
- CT - slightly enlarged LN; CEA 2.0
- LAP Rectosigmoid - 8' and 25 LNs removed
- Biopsy - 1/25 LN slight molecular invasion
- Stage IIIa - T3 N1 M0
- Chemo: 3 of 8 rds Ox; 8 rds 4000mg Xeloda
10/2017: PET - NED
03/2018: PET/CT - NED
09/2018: Colonoscopy & PET/CT - NED
03/2019: CT - NED
09/2019: Colonoscopy & CT - NED (0.9 CEA)
03/2020: CT - NED (1.1 CEA)
11/2020: CT - NED (1.2 CEA)
Still Here!

teacher2017
Posts: 275
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: Lydia Clark

Re: NEW-Need some positivity here.

Postby teacher2017 » Tue Mar 29, 2022 8:06 pm

Hi there all- haven’t been here for a while. It’s March 2022 and still NED 3 yrs 7 months since stage 4 colon cancer. Just lost 30 lbs on purpose and feeling good. Fear is there still at scans and bloodwork. Signetera test is negative too. Next scan is June. Not retired yet! Two more years and I’m out of NY…God willing. Hoping all is well with all of you!
Lydia




DonutHead wrote:All great news! Think you will be fine. 3 years clean after everything you have been through is amazing. Just keep your head up and know you will make it through this round as well. All will be good, think positive! I just had my latest rounds of scans and tests, everything was clean. I really do believe the surgeon taking out all of the lymph nodes around the site, 25 in total, is what did it. While the chemo kicked my butt and the doctor called it "optional" (but something he would do if faced with the same circumstances), glad I toughed it out and made it through. 4 years pushing to 5......

Hope all is going well in retirement!
50 yo mom of 2 (15, 18)
DX stage 3c - 12/17 LN. T3
8" colon resection 9/22/17
6.1cm tumor
folfox 11/17-4/18
CEA -1.4 11/8/17
Colonoscopy- 5/18-CLEAR!
Cea -1.8 6/18
Cea -2.1. 8/18
8/10/18 Stage 4
1cm met in seg.8 liver
Liver resection-9/18
Cea -1.5/1.2
Port removal-9/19
Cea -1.2 10/19
Cea -1.1 02/2020
Cea - 1.2 5/20
Cea-1.1 9/20
Cea- 1.3 2/21
Cea.1.3 5/21

User avatar
Atoq
Posts: 406
Joined: Wed Oct 25, 2017 9:31 am

Re: NEW-Need some positivity here.

Postby Atoq » Wed Mar 30, 2022 4:08 pm

Congratulations! Really good news! :D

All the best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED

DonutHead
Posts: 68
Joined: Tue Oct 03, 2017 6:45 pm
Facebook Username: mark

Re: NEW-Need some positivity here.

Postby DonutHead » Thu Mar 31, 2022 1:11 am

Good to hear from you and that all continues to be well! Retirement is something that has been on my mind lately as well so know what you are thinking! :) Have not gone in for scans since October of last year, but continue to believe all is well...Will go in for scans and blood work this summer, which will be just shy of the 5 year mark, but it's really never over now that we have been diagnosed, is it? Sad reality, but we are all insignificant in the larger scheme of things. Live for the day, that has been my motto since the cloud lifted over the initial shock.

Family and I have been in Cambodia over the last few days...we have just taking been taking advantage of wvery opportunity to spend quality and meaningful time together. Good memories from now on!

Hope everyone is as well as they can be and is living life to the fullest!
Male 49 yrs.
09/2017: Colonoscopy 2.2x2 cm lesion - Invasive Adenocarcinoma
- CT - slightly enlarged LN; CEA 2.0
- LAP Rectosigmoid - 8' and 25 LNs removed
- Biopsy - 1/25 LN slight molecular invasion
- Stage IIIa - T3 N1 M0
- Chemo: 3 of 8 rds Ox; 8 rds 4000mg Xeloda
10/2017: PET - NED
03/2018: PET/CT - NED
09/2018: Colonoscopy & PET/CT - NED
03/2019: CT - NED
09/2019: Colonoscopy & CT - NED (0.9 CEA)
03/2020: CT - NED (1.1 CEA)
11/2020: CT - NED (1.2 CEA)
Still Here!


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