My dear beautiful Mother

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My dear beautiful Mother

Postby Diana17 » Fri Sep 08, 2017 2:49 pm

Dear colon clubbers,

My name is Diana and I am from Costa Rica, I´ve been frecuently coming to read the blog to find answers in desperate times for my mom´s treatment and journey with the disease. I know you don´t know me or have heard of me, but I thank you from the bottom of my heart for the advice, encouragement and solidarity that you all have and gave my family and I during this time.

My mom´s battle ended this past Wednesday after a three year long battle with rectal cancer, she fought the disease like a Champion and is my hero at facing the disease.

I wish all the caregivers and patients to keep the good spirit, fight with all your heart and never ever give up!! I´m glad I found this blog and you, Thank you so so much

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Re: My dear beautiful Mother

Postby ValZen » Fri Sep 08, 2017 5:52 pm

Hi Diana, I am very sorry to hear about your Mom. This must be such a difficult time for you and I can understand why she is your hero. She sounds like she was very brave, like so many of the people on here who persevere and endure very long, at times very trying treatments. I understand it's not just the patient who fights through - but it's loving family members and friends as well. My heart goes out to you and your family at this time. Thank you too for encouraging words for those of us trying to find our way and I hope you find comfort and peace in the good memories of your Mom, in time.

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Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: My dear beautiful Mother

Postby susie0915 » Fri Sep 08, 2017 6:31 pm

So sorry about your mother. My heart breaks for you. Prayers for you and your family.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

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Facebook Username: Robin.lawthers
Location: Florida

Re: My dear beautiful Mother

Postby Robino1 » Fri Sep 08, 2017 6:54 pm

I am so sorry to hear about your dear mother. I send my sincere condolences to you. :cry:
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: My dear beautiful Mother

Postby DarknessEmbraced » Fri Sep 08, 2017 7:35 pm

I'm so very sorry for the loss of your mother!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Re: My dear beautiful Mother

Postby SweetC80 » Fri Sep 08, 2017 7:52 pm

I'm so sorry for your loss. Many prayers to you and your family.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

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Joined: Sun Aug 17, 2014 11:19 am

Re: My dear beautiful Mother

Postby canadiandaughter » Fri Sep 08, 2017 8:15 pm

My deepest condolences to you and your family. It sounds like your mom was truly a hero!!!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

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Re: My dear beautiful Mother

Postby Lee » Sat Sep 09, 2017 2:28 pm

Hi Diane,

So sorry about your mother, my condolences to you and your family. Please feel free to stick around if you think it will and you, butt as the very least it will help others.

All the best to you and your family during this most difficult time,

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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Joined: Sat Aug 15, 2015 7:47 am

Re: My dear beautiful Mother

Postby jortego128 » Sun Sep 10, 2017 5:23 pm

I'm very sorry for your loss Diane. Our mothers are the most beautiful people in our lives, may God rest her soul and comfort her family in this most difficult time.
DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016

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Re: My dear beautiful Mother

Postby Joannerogers » Sun Sep 10, 2017 5:52 pm

Oh My! I'm so sorry! Mothers are so special! I know you'll always have her in your heart! You are both heros!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

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Re: My dear beautiful Mother

Postby ocstacy » Mon Sep 11, 2017 2:37 am


I am so sorry for your loss. It must be so tough losing your mother. I go through my up's and down's with my mom. Some days I am very strong for her and some days I am weak thinking about what our lives would be like without my mother. I am caring for my mother now age 77 with Stage 3A rectal cancer. I have been trying to be the best advocate, nurse, caregiver, etc. for my mother. I found her a good surgeon at USC but still worried about the pain that she is in following radiation.

If there is any advice you can give to me, please share. thank you and god bless <3
Caregiver/daughter to dear mother age 78, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low-grade adenocarcinoma- 6 cm
Neoadjuvant start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 hospitalized abscess/hernia - home 11/06/17 antibiotics
Took her last chemo med 05/10/18! Ileo reversal 07/24/18
1st BM after reversal 07/25/18 Anal Fissure 8/15/18
Me:1st Colonoscopy age 38. 08/17 Benign polp.

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Re: My dear beautiful Mother

Postby jhocno197 » Mon Sep 11, 2017 8:29 am

I am so sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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