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Postby jhocno197 » Fri Sep 01, 2017 7:14 pm

Thinking of you.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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Maggie Nell
Posts: 1146
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Grouseman

Postby Maggie Nell » Sat Sep 02, 2017 10:52 am

Me too.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception (ouchies)
Lymph nodes: 0/22
T3 N0 MX
Pending colonoscopy 23 March 2021
Unexpected severe allergic reaction to the prep...big WTF!?
To be rescheduled...

Posts: 6203
Joined: Sun Apr 16, 2006 4:09 pm

Re: Grouseman

Postby Lee » Sat Sep 02, 2017 2:47 pm

Me three,

Thinking of you,

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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Joined: Fri Aug 24, 2012 8:00 am

Re: Grouseman

Postby Maia » Sun Sep 03, 2017 6:32 am

I'm here, T. Sending my best!

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Posts: 857
Joined: Mon Aug 12, 2013 12:30 pm
Location: SE Michigan USA

Re: Grouseman

Postby GrouseMan » Wed Sep 06, 2017 12:39 pm

I am doing OK. I pop in for a few mins here and there from time to time, but I find my heart often isn't in it much, as its painful to be reminded of the situation I had gone thru, and the very rapid decline of my wife 3 months ago. I feel the medical establishment really let us down. My head really isn't much into anything including continued research at this point. Trying to honor her memory with the dogs, but work makes it difficult to keep up their training. Still in the process of getting affairs in order. Every time I thing I am ahead I find other stuff I need to take care of. Since before we ever got married she took care of everything having to do with vehicle purchases, mortgages, everything financial, so I really had no clue! I found out yesterday that I could lose the truck I am still paying on because I was not a co signer on that particular loan. I will have to get a new loan in my name (probably with worse interest rate now) if I want to keep the truck! A time consuming PITA! Have had issues with our horse, as he has been throwing shoes left and right the last couple of months! It aint cheap to have them reset. I don't like the farrier much they use at the barn, and my Wife's preferred farrier lately has been very unreliable in terms of showing up. I can't afford to take time off waiting for a no show. Also - all the work around the property that the two of us use to do, is now done only by me, and its slipping.

So - I am doing OK. Not great.

DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017

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Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Grouseman

Postby DarknessEmbraced » Wed Sep 06, 2017 2:44 pm

I'm sorry you're having such an awful time and hope things get better for you soon!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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