Terrified

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Dcontreras12
Posts: 1
Joined: Wed Aug 23, 2017 11:53 pm

Terrified

Postby Dcontreras12 » Thu Aug 24, 2017 12:52 am

Hello everyone
My name is dayana I'm 25 yo I am a heavy drinker and smoker have been for the past 10 years
About 6months ago I started having explosive diarrhea and some bleeding then my stools are very thin and I feel like I have to go all the time in the past two weeks I have been constipated and have some mild abdominal pain and cramping
When I gotta go I gotta go but sometimes nothing comes out my stools are still extremely thin
I am overweight and I've never had a healthy diet
I told my Dr this but she didn't even check she just said I was too young for this disease
I can't go to another Dr cause I have medical and I was assigned to her
Idk what to do I keep telling her I know something is wrong but she said I'm a hypochondriac and I need to stay away from google
I know something is wrong and the thought of leaving my children behind breaks my heart.
Should I exaggerate my symptoms so she can be as concerned as I am?
Did any of you have the same symptoms as I do and was it something else ?
I'm sorry to bother you guys but I can't talk to anyone about this cause everyone thinks I'm just being dramatic

NHMike
Posts: 2527
Joined: Fri Jul 21, 2017 3:43 am

Re: Terrified

Postby NHMike » Thu Aug 24, 2017 11:58 am

Adults usually don't get colorectal cancer at your age unless they have a genetic issue like Lynch Syndrome. The best approach would be to get a colonoscopy where they put a tube in and examine your rectum and colon looking for problems. There could be various things causing your problems and a colonoscopy should find them.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

benben
Posts: 323
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: Terrified

Postby benben » Thu Aug 24, 2017 12:08 pm

Yes,

If you have blood just get a scope. Demand it.
Then you'll know why there is blood, regardless if its cancer, colitis, Diverticulitis, chrones - or hemis/fissure.
Then you make a plan based upon that.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
11/8 PORT OUT!
7/20 CT - NED (3 years!)

NHMike
Posts: 2527
Joined: Fri Jul 21, 2017 3:43 am

Re: Terrified

Postby NHMike » Thu Aug 24, 2017 12:35 pm

I can't go to another Dr cause I have medical and I was assigned to her


I didn't understand this so thought about it and I think that you have Medi-Cal, the California medical program for low-income residents. I had a look at some Medi-Cal literature and there are two forms: regular Medi-Cal where you find your own service providers that accept Medi-Cal and Medi-Cal Health Plans which are managed care plans, similar to an HMO. You appear to have the latter. So you need to be able to go to your doctor and make the case for a colonoscopy as ben stated.

Perhaps someone here familiar with Medi-Cal Health Plans could provide some suggestions in dealing with Medi-Cal PCPs.
Last edited by NHMike on Thu Aug 24, 2017 6:46 pm, edited 1 time in total.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
WriterGirl1969
Posts: 516
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: Terrified

Postby WriterGirl1969 » Thu Aug 24, 2017 6:42 pm

Dcontreras12 wrote:Hello everyone
My name is dayana I'm 25 yo I am a heavy drinker and smoker have been for the past 10 years
About 6months ago I started having explosive diarrhea and some bleeding then my stools are very thin and I feel like I have to go all the time in the past two weeks I have been constipated and have some mild abdominal pain and cramping
When I gotta go I gotta go but sometimes nothing comes out my stools are still extremely thin
I am overweight and I've never had a healthy diet
I told my Dr this but she didn't even check she just said I was too young for this disease
I can't go to another Dr cause I have medical and I was assigned to her
Idk what to do I keep telling her I know something is wrong but she said I'm a hypochondriac and I need to stay away from google
I know something is wrong and the thought of leaving my children behind breaks my heart.
Should I exaggerate my symptoms so she can be as concerned as I am?
Did any of you have the same symptoms as I do and was it something else ?
I'm sorry to bother you guys but I can't talk to anyone about this cause everyone thinks I'm just being dramatic


Hi Dayana. So sorry to hear you are having such scary symptoms. I'm sure they aren't fun at all! <:- )
If it makes you feel any better, my symptoms were nothing like yours. Also your symptoms could be lots of other things. Because there is some bleeding, I would definitely try to push for a colonoscopy just to be safe. Yes, 25 is VERY young for colon cancer, but that doesn't mean it's impossible. Chances are you have something completely unrelated going on, but it never hurts to err on the side of caution. So I'd say if you are in some type of health care system where a doctor is assigned to you and you have no choice or options for second opinions, I'd try to have a serious conversation with my doctor about ruling out something potentially dangerous even if you are being overly worried. At least then you would know, and could take some comfort in knowing what it's not, even if you don't know what it is. If she won't listen, go to a hospital and see if you can get them to agree to checking you out there. Or try an extended care facility. Or call a gastroenterologist and see if you can get them to convince your doctor to at least let you be screened.

As for exaggerating your symptoms, I don't recommend it only because you could impact getting the care you really do need. Try to be up front with them, but also stand up for yourself. Doctors don't always listen, but even if someone is a hypochondriac, that doesn't mean symptoms shouldn't be taken seriously.

Best of luck Dayana, and hopefully you will find out this is nothing serious. I will keep you in thoughts and prayers.

Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Terrified

Postby jhocno197 » Thu Aug 24, 2017 9:08 pm

Definitely try pushing for a colonoscopy.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

DarknessEmbraced
Posts: 3583
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Terrified

Postby DarknessEmbraced » Wed Sep 06, 2017 4:37 pm

I'm sorry you're going through this!*hugs* I would push for a colonoscopy.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

BIG ROB 69
Posts: 63
Joined: Sun Aug 28, 2016 2:00 am
Location: Long Island, NY

Re: Terrified

Postby BIG ROB 69 » Thu Sep 07, 2017 6:23 am

If you haven't already done so, tell them a close relative has cancer. This might facilitate at least a colonoscopy. Good luck, and I hope it is just hypochondria. :)
3/18/2015 DX CC Stage3/4 49YO MALE IN NEW YORK
Inoperable...hepatic artery
11/15 oper to rem block...colon bypass
4/16 oper to remove scar tissue
5/16 Lynch pos.
10/16 Two bile tubes installed to relieve jaundice
So far I have done the three main chemo drug rounds and on 12/19/16 start Keytruda.
No chemo after 8/3/16 CEA: 10/14/16-409 12/19/16- 887 Mostly my CEA was in the 140-180 range.
CEA: 1/9/17-415 1/30/17-156.2 2/20/17-120.8 3/13/17-98 4/21/17-83.6 5/12/17-64.7 6/1/17-32.1
7/25/17-32.6


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