Hi Everyone …….Caregiver for my wife, well it`s going on 5 years now for my wife and the Dr. appointment last week did not bring good news again, the cancers continues to grow and he said he doesn’t have again more treatments to offer her. (he is checking with Mayo on Clinical Trials) I don’t post much but read every day. She has tumors in the lungs and liver. The Dr. give her very limited information on her condition, his standard statement is “the tumors are growing” nothing about size, where they are, what`s down the “road”?? but she doesn’t ask for more information either. She doesn’t want a lot details either, so I remind quiet and do not ask question out of respect for her. I do see the Scan reports on line so I do get some information but it`s hard for me to figure out sometime with a the medical terms
So my questions:
I think the Dr. should be should be forthcoming with more information given her condition now? How much time is left, tumor size? General what is expect down the road and yes I know he doesn’t have a crystal ball to predict the future but she has been his patient now for 5 years so he has to have some idea, last January at an appointment when the CT scan showed that tumors were growing, my wife ask “well what kind of time frame are we talking? Do I need to get my thing in order”? Not much of a response from him.
Have you found the Doctors avoid this type of Questions??
Also as I have said that my wife doesn’t want a lot of details and doesn’t talk about her cancer much, she give very limited information to our sons and daughter. Should I tell them she has run out of "standard" options?? She has said nothing about her wishes (the tuff questions) the type of care at the end, funeral??
How have you handle these situations??
It been a long 5 years to say the least, I have gone with her to all her appointment and Chemo
Thanks` for listening
to DW 6/12 stage 4
6/12 colon resection, liver Mets
Folfox & Folfiri till 4/13
liver resection Mayo 5/13 Clear margins
mop up chemo
NED till 9/14
cancer complete hysterectomy,
CEA climbing 12/14
1/15 scans, tumors return
1/15 Mayo for surgery; need shrinkage before surgery
Folfiri w Erbitux
break over Christmas, rash from Erbitux
1/16 scan tumors growing, liver, lungs, lymph nodes involvement
Folfiri w Avastin 1/16
Scan 6/17 tumors growing.
At peace 7/17