Scanxiety long and drawn out this time. March/ April people?
Posted: Tue Mar 14, 2017 8:29 am
I had pink urine after 2 and 3 hours of aerobics and cardio on 3 occasions so went to a urologist just to be safe. He feels it's benign but ordered an MRU (MRI of the bladder, etc. after an injection of Lasix) and since they were there, he suggested I have my MRI due in April on the same day. So, yesterday I had the MRU/ MRI. Those results will be online in 3 or 4 nights and my anxiety is starting to rise. Next week I'll have a cystoscopy of the bladder and have been told by so many how uncomfortable it is.
The next week is my CT of my Chest and my CEA and other blood work. Then another three or four day wait. If the hospital didn't post them online, I wouldn't get my results until I see the onc on April 11th!
Another 'fear' is that six months ago he mentioned stopping testing after this set of scans and just having me see my GP if I had 'symptoms'. I don't feel comfortable stopping this soon. It's been 8 years since my original Stage IIIB dx and this makes 5 years since the spread to my liver (1.4 cm and 80% of my liver removed with clear margins) making me Stage IVa (my onc upstages and so does BCBS). I've read loads of papers and most say that by 6 1/2 to 7 years post hepatic resection you can assume you're cured. I'd rather be 'bothered' a few times a year than stop early and it cost me my life.
Anyone else scanning this month? I keep telling myself that worry won't change anything and yet I know that the hospital posts results around midnight a few days after the scan and will wake to check my emails, have an upset stomach and horrible dread until it's all over.
I'm on anxiety medicine because for the first 2 years after my HR, I had terrible health anxiety. That's pretty much under control but the Chronic Disease Post Traumatic Stress Disorder can overtake me when we're at a party and a friend's husband seeks me out to discuss her last days because he knows I'm 'the only one who knows what she went through' or another local friend's husband emails to tell me they're not sharing it openly, but all treatment has failed and she's a very, very sick woman (rectal Stage IV).
This is the first time my testing and waiting for results will have been spread out over 3 weeks AND I had rescheduled on my own or it would have been LONGER.
UPDATE: The MRU/ MRI results are already posted. All clear! MRI shows a small cyst near where my liver regrew and that is unchanged since the first MRI done after HR! Not even noted in the 'findings'. Just mentioned down in the body of the report. MRI also showed the base of the lungs and they were clear.
Diane
The next week is my CT of my Chest and my CEA and other blood work. Then another three or four day wait. If the hospital didn't post them online, I wouldn't get my results until I see the onc on April 11th!
Another 'fear' is that six months ago he mentioned stopping testing after this set of scans and just having me see my GP if I had 'symptoms'. I don't feel comfortable stopping this soon. It's been 8 years since my original Stage IIIB dx and this makes 5 years since the spread to my liver (1.4 cm and 80% of my liver removed with clear margins) making me Stage IVa (my onc upstages and so does BCBS). I've read loads of papers and most say that by 6 1/2 to 7 years post hepatic resection you can assume you're cured. I'd rather be 'bothered' a few times a year than stop early and it cost me my life.
Anyone else scanning this month? I keep telling myself that worry won't change anything and yet I know that the hospital posts results around midnight a few days after the scan and will wake to check my emails, have an upset stomach and horrible dread until it's all over.
I'm on anxiety medicine because for the first 2 years after my HR, I had terrible health anxiety. That's pretty much under control but the Chronic Disease Post Traumatic Stress Disorder can overtake me when we're at a party and a friend's husband seeks me out to discuss her last days because he knows I'm 'the only one who knows what she went through' or another local friend's husband emails to tell me they're not sharing it openly, but all treatment has failed and she's a very, very sick woman (rectal Stage IV).
This is the first time my testing and waiting for results will have been spread out over 3 weeks AND I had rescheduled on my own or it would have been LONGER.
UPDATE: The MRU/ MRI results are already posted. All clear! MRI shows a small cyst near where my liver regrew and that is unchanged since the first MRI done after HR! Not even noted in the 'findings'. Just mentioned down in the body of the report. MRI also showed the base of the lungs and they were clear.
Diane